My Thoughts.

by Amie on September 30, 2011

I’ve been meaning to write a post about this for quite so me time. But just haven’t known which direction to take or if I should even be talking about this.

But, this is my blog and these are my thoughts so I decided to let go of worrying about ‘if’ I should chat about this.

So here it is.

It seems everywhere I turn, people say, “O you’re so lucky you can’t eat dairy or gluten or packaged foods”…”No wonder you’re so skinny”…”I wish I had your food intolerance’s”…

What?

Seriously?

Yes. Seriously. These are some of the common words out of people’s mouths when I tell them that I’m intolerant to sulfates, most dairy, soy, grains, oils and gluten.

It really struck me last week when I was out to dinner ordering chicken with a side of vegetables and told the server the usual: no oil, no dairy, no marinades, no dressings, no sugar, no gluten.  She turned to me and said very sarcastically, “Don’t worry, there won’t be any FAT in your dinner.” Wow. I was shocked. Was she serious? I looked back at her and said actually I am intolerant to these foods and I’d like a sliced avocado with my meal.  She then apologized as she realized she spoke too soon and was being quite rude.

This isn’t the first time a waiter or waitress has commented on my order.

To be honest, it happens all the time.

It once bothered me.

Not any more.

And that’s why I’m writing this today. To let you know that you’re not alone. When your body rejects a food or an ingredient in a food and you have a bad reaction- You are allowed to say NO to that food and stay away from it. Don’t feel bad or let other people make you feel out of place or odd.

I often have to meet friends after dinner if they are dining at a restaurant that doesn’t have something I can eat such as Italian, Chinese, Thai, etc.

There’s nothing wrong with this. I’d rather feel good eating my food and then meet friends rather than suffer through a meal only to get so sick I can barely move and leave the restaurant.

I was recently out to dinner with a group of people whom I had just met.  I ordered my fish and asked that the dish be served atop vegetables instead of pasta. I explained to the waiter that I am gluten-intolerant and cannot eat pasta, therefore I’d greatly appreciate if they could accommodate me with vegetables. Not a problem. But, when it came to the woman across from me to order, she ordered the same thing and said to our server, “Actually, I don’t want pasta either, I’m going to be good like Amie and not have the pasta because I don’t want the carbs.” I was Shocked. Shocked. And honestly, a bit taken back. It was shocking to hear someone say I was being ‘good’ for not ordering the pasta. What was I supposed to do? Order the pasta and get so ill that I can’t leave the restaurant? Moreover, since when is pasta ‘bad’ and since when are carbs ‘bad’? I was so upset by this and the way that our society views foods as good and bad.

We all eat what we want and what makes us and our bodies feel good. If feeling good means having a bite of dark chocolate or a scoop of ice cream or a piece of cake or a juicy steak, then go for it. Just eat it in moderation. And then simply stick to your clean eating.

Many people think my way of eating is too strict. But it’s not me that’s putting these rules onto what my body can eat and can’t it. It’s the reactions that are caused by all these foods that create my way of eating. I dabble with nut butters and nuts and seeds but have to be careful because if I eat too much of these foods, my body reacts.

Last week, for instance I tried to have two rice cakes with nut butter and cinnamon. Bad reaction.

I also recently tried having a snack of a banana with dark chocolate chips. Bad reaction.

Arg.

Frustration.

And are there days when I don’t care anymore and all I want is a bowl of cereal and crackers and ice cream?

Yes.

And about 3 times a year I do.

And I regret every second of it. Because I’m in pain and swollen for the next 48 hours after I indulge in these foods.

But for some reason, my body wants it and so for these few times a year, I cheat.

Why? Because I want to know what it feels like to be able to eat those foods. I think, ahhh it must be great to be able to just sit and grab a snack and eat these fun foods…

And then I seriously regret it when I’m in bed in pain unable to move. Yuck.

I’ve been teased and made fun of because I cannot drink alcohol and because I have a difficult time eating out (most restaurants use many canned items for meals along with marinades, oils, etc.) but I just shrug it off because my life is about ME.

It’s about feeling good.

And ya know what? Tease me all you want. Go ahead.

It doesn’t bother me.

Why?

Because I’m confident that I am healing.

I have my body to thank for telling me what foods I can and cannot eat.

The gut inflammation was and still is so bad when I eat the foods that I react to. These foods simply are not worth the pain.

But do I miss them?

Heck ya.

Do I wish I could sit outside at the outdoor cafes and eat a cheeseburger and have a beer?Yes.

Do I wish I could simply leave my apartment for the day not having to pack snacks and food to eat when I get hungry?

Do I wish I didn’t have to pack a lunch every day for the 6 years I was in corporate America?

Do I wish I could go on a date with a cute guy and have a slice of organic pizza and then stop by a cute little ice cream shop for a scoop of chocolate on a wafer cone?

Do I wish the person sitting next to me on airplanes didn’t tease me for eating a whole avocado with a spoon in mid-air during my flight?

Do I wish people would understand what it’s like when you can’t simply just stop on a road trip, vacation, walk around town, etc. for a bit to eat anywhere?

Do I wish I could come home to my apartment after an exhausting day and just pop a (healthy) frozen meal in the microwave or stop by the million take-out spots in Manhattan to pick up a bit and get on with my night?

Do I wish I could sit and eat cute little crackers with cheese cubes and enjoy a glass of wine for a pre-dinner appetizer?

Do I wish I could not have to call ahead to hotels to be sure I have a microwave and fridge in my room?

Do I wish I didn’t have to tell white lies to get out of eating at swanky restaurants because I’m not spending $50 on steamed broccoli while everyone else boozes and eats a 5 course meal?

Yes.

I do.

I do wish for all these things.

But I also know that I am special. Therefore, I can make my own burgers. I bring my little cooler on the airplane. I eat at home before meeting friends out on the town.  I get cozy in my hotel room making eggs for breakfast and chopping up veggies in Ziploc bags for snacks when traveling. I love packing a brown bag lunch. Why do I love all these things? Because I’ve never known it any other way.

So I just don’t know what it’s like to pop into a restaurant and order anything or go for a road trip without food on hand, or fly without a 3 course homemade meal or walk around Manhattan on a Saturday afternoon without a bag of snacks on me.

I know some day I’ll be able to eat more foods as my body changes.

I always enjoy a bit of dark chocolate and a few almonds for dessert.

The worst part is that there are so many healthy foods that I can no longer eat.

Nothing out of a can, nothing containing sulfates (which is in everything, pretty much), very little nuts, seeds, nut butters, no oils, very little dairy (I can digest Greek yogurt and a few cheeses –very exciting for me), no gluten, no grains, no beans, no sugar, no soy (which is in everything as I just learned there is soy in a Lipton tea that I’ve been drinking).

Crazy, isn’t it?

But what has kept me alive and strong and positive is that I know my intolerance’s will hopefully one day vanish.

Did I get excited to buy ricotta cheese last week and enjoy a few spoonfuls hoping I would not get sick? Yes.

Did I get sick? Yes.

So sad.

But I have to focus on what I can eat and what my body can digest. And I’ve grown to love these foods.

What do I love?

My veggies, my avocado, my eggs, organic turkey and chicken, my homemade salsas, guacamole’s, dressings and marinades.  My Greek yogurt, my ricotta cheese and a few other sharp cheeses (Yeaa), my sea vegetables such as Dulse and Nori.

And some others…

As many of you know, on December 3rd of this past year I ate kale from a farmer’s market, I became very ill- suffered from many, many parasites, pathogens, bacteria overgrowth cases, C-Diff colitis, dysbiosis, leaky gut, mercury accumulation and so munch more. I was on disability from my job, on pain killers and steroids for 3 months.

Then, I woke up and realized I don’t want to live my life this way and I switched from Western medicine (Steroids and pain killers and doctors who wouldn’t listen to me) to Eastern medicine working with an M.D. specializing in toxicity and stomach issues. It was then I relieved myself of steroids and pain killers and have been healing myself the natural way ever since.

I’m telling you this story because you are not alone. I woke up every morning from December thru August in chronic pain. Chronic.

What hurt the most during these past few months, you ask?

The fact that my corporate job and western medical doctors thought it was all ‘In Your Head’.

That’s what they told me.

And honestly, that hurt more than the pain in my belly.

So much more.

My pains were real. They are real. There is nothing in my head.

But this caused me so much pain. I could barely sleep at night thinking that my co-workers thought I was out having a blast on disability when I was in the hospital in chronic pain.

Why did they cause me so much pain? Because it made me feel Alone.

I recall waking up thinking … No one is helping me right now. No one.

I exhausted all doctors in Manhattan, New York State, New Jersey and Philadelphia.

No one had an answer.

Until I found my medical doctor whom I am now working with. Who found the key to the lock.

He discovered I am missing a gene. I was born without a gene to absorb Folate.

And, I was suffering from mercury accumulation in my body.

Now, Western medicine tested my heavy metals many, many times but Western medicine only looks at the heavy metal levels in your blood.

Eastern medicine, however tests the mercury in your Body, your Tissues through a urine test.

And that is how I discovered that nothing was in my head.

My instincts were right.

Dead on, to be exact.

So now, I just had all of my mercury fillings removed—long process to say the least.

And, I’m waiting on the results of my mercury levels now that they’ve been removed.

Then, we will take a look at my chelation schedule.

It’s been quite a road and a crazy journey.

But I stayed strong. Stayed positive.

Why?

Because I wanted to fight it to help people like you and me fight it, too.

And all this time…all those days of pain…what’s kept my head up high?

My blog.

My passion for helping people like you.

Knowing there is a light at the end of the tunnel.

And you’re almost there.

xo

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{ 102 comments… read them below or add one }

JJ @ 84thand3rd September 30, 2011 at 6:21 am

Good for you for not only believing in yourself enough to do what you need to, but for saying it out loud. I hate having to justify why I eat how I eat, so I’ve stopped doing it, take it or leave it, it’s just me! Thanks for sharing!

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Pauline O'Sullivan September 30, 2011 at 6:37 am

I’m so glad you wrote this brilliant blog post Amie. You are such an inspiration to me. Your reflections really hit home on so many levels. Thank you for your honesty and courage. You are wonderful!

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Amie September 30, 2011 at 8:14 am

Thank you so much Pauline! Xxxooo Love you. Muaahhhh

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Jon September 30, 2011 at 9:02 am

Amie – Just found your blog. What a story! I had no idea someone could live with such dietary restrictions. But I feel really empowered suddenly by reading this post reading about how you are stepping up to the plate and not letting food and others dictate how you should live your life.

I am REALLY happy to read that you are getting a handle on what is wrong and how to fix it. I have done a similar diet for 2 weeks and it honestly felt like the CLEANEST way to live. My body finally “evened out.” Even though I can eat gluten, I do notice that I just feel like crap (mostly sluggish) every time I eat a gluten product.

Thanks for the post! You have given me a lot of new ideas!

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Amie October 2, 2011 at 6:44 pm

Jon,
You just made my night! THANK YOU. You are amazing and I am so happy to hear that you are feeling better and evened out. It’s so great to connect with readers like you and I am delighted to keep in touch and I look forward to your future comments. Have a great night and keep feeling GREAT!

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Katy Widrick September 30, 2011 at 9:17 am

I love this post — and I’m glad it’s so detailed. I think that so many “diets” (not losing weight, but nutrition choices) are becoming trendy, and the fact is…for many people, it’s a serious health issue. I love that you shared your honest experience, and I hope people read and think hard.

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Amie October 2, 2011 at 6:43 pm

Thank you, Katy!!! So great to hear from you. I am so happy to hear that you enjoyed my post and I really appreciate your comment and expressing your thoughts. I am so glad that I revealed all of this information to my readers to let them know that you can’t hind behind your pain and there is no need to be embarassed!
xoox
Have a fabulous night and so sorry for the delay as I’ve been traveling!

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DonnaKay September 30, 2011 at 10:51 am

Thank you!!! My husband is gluten intolerant at least five years. When I started not having gluten junk around (so he wouldn’t be tempted), I started feeling healthier, as Jon said cleaner.
People just can’t stand anyone who is different either by choice or requirement. Thanks for the encouragement to stand up and remark in a way that helps them to see that they are rude and arrogant without insulting them. Because of your article, I’m proud to take my health into my own hands and choose healthy living. Keep up the good work. I really enjoy your blog. Thanks

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Amie October 2, 2011 at 6:30 pm

Thank you, Donna. So happy to hear from you and I am so happy to hear that you are enjoying my blog. I am so glad that I made you feel proud to take your health into your own hands when no one else belives you and no one supports you.
Thank you for making me smile; have a wonderful night and I look forward to your future comments.
xoxo

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Patti (PJ) September 30, 2011 at 11:10 am

Hey Gal! First off, thank you for accepting my friendship on Facebook. Any friend and moral supporter of Blue Cotton Memory is a friend of mine. Also, I admire you for speaking out on your health issues, especially “sticking to your diet” in restaurants. (Of course I understand also it’s not by choice unless you want to accept the consequences of getting sick.) I guess I’m different in the sense that if another of my party talked about me being “good” I would clearly speak up and say “it’s definitely not by choice”. That way you don’t have to go into detail about health issues, yet others would probably take the hint. As far as the waitress is concerned, I waitressed for over 30 years and I have seen and heard just about every conceivable dietary substitution you can imagine, but I never commented, because first of all it is our jobs to make sure the customer gets what they want without question. It is none of our business as to why. Only if there is a clause on the menu or sign on the wall which says “NO SUBSTITUTIONS” should we question. Even then, if asked, out of courtesy we should inquire if there is a medical reason, then talk to the chef or cook. It is the waitress’s job to make the customers happy.
I must say though, I am guilty sometimes of insensitivity. For example, I’m a bit over weight (about 50 pounds) and some ladies in my church have been very ill and lost a lot of weight. When they recovered and returned to church. I said, “I wish I could lose as much weight as you.” Then quickly added, “but by my will power, not by being sick”. They didn’t lose the weight by choice, so I shouldn’t make light of it.

God Bless,
PJ

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Amie October 2, 2011 at 6:27 pm

Patti,
Thank you so much; I greatly appreciate your kind words and comment. You took the time to write such a wonderful comment on here and I cannot thank you enough for your honesty and for sharing your thoughts and your story, as well. You are so strong! I am so happy to hear from you and delighted you read my blog. Have a great night and I look forward to hearing from you in the future. Have a great night and keep up the amazing work.
xoxo

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CarliCraves September 30, 2011 at 11:16 am

Amazing post. Don’t think for one second there aren’t SO many people out there suffering in silence for the same reasons. I have gone through a lot similar experiences and I can empathize 100%. Blogs like this are so good so people know that aren’t alone either and we acan all learn from each other. I am way overdue for talking about my food intolerance on my blog. Its just such an undertaking. But you have inspired me!!!

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Amie October 2, 2011 at 6:22 pm

Thank you, Carli; so great to heart from you. I am so happy to hear that I have inspired you and please do send me the link when you blog about this and let your feelings out on your blog, as well. It was tough to do, but honestly it felt so good to let all of this bad energy out. I’m staying positive and keeping my head up. Just hurts so much to know that my old job still won’t talk to me and hurts more than anything, especially since I was so sick and in so much pain.
Thank you again; keep your head up and hope to chat soon. You are amazing and your blog is fabulous.
xoxo

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Anita September 30, 2011 at 1:10 pm

I think you are very brave and I’m so sorry that people are so insensitive!
Great post and many thanks!

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Amie October 2, 2011 at 6:21 pm

Thank you Anita; I am so happy to hear from you. I greatly appreciate your support and I look forward to hearing from you in the future! xo Have a wonderful night.

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Jo-Lynne {Musings of a Housewife} September 30, 2011 at 1:51 pm

Wow. Just, wow. And I thought I had it bad! LOL

(HOW did you know it was the kale, by the way??)

Anyway, I wish I knew what was “wrong” with me. I feel okay most days, but I have times of extreme bloating and heaviness in my gut. I know that gluten bothers me so I avoid it like the plague. But I’m sure there’s more I should avoid, and I don’t know how to pinpoint it. And frankly, it makes me sad to imagine doing without all those things. Doing without gluten isn’t so bad. But dairy? Soy (only b/c it is in EVERYTHING)? Wine? Chocolate? Coffee? I love those things! LOL. (Of course I thought I loved gluten and I’m fine without it.)

Just want to say, keep on keeping on! It’s a tough road and so little is known about food sensitivities that often people are rude, and doctors are misguided. I’d love to know more about the doctor you found who is helping you.

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Amie October 2, 2011 at 6:20 pm

Thank you so much Jolynne; so sorry for the delay in response to your comment as I’ve been traveling and unable to get to a computer to respond!Your blog is amazing and YOU are an inspiration to me; I was thrilled when I saw your comment and delighted to hear that you read my blog. The doctors traced everything back to parasites on the kale and that is what sparked the pathogens, bacteria overgrowth and c-diff colitis along with all the antibiotics the western medicine doctors had me on.
Thank you for your kind words; I love you darling. Your comment means so much to me and I thank you for everything! I am honored to have such amazing support from readers like you.
xoox

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Jenn September 30, 2011 at 2:00 pm

Thoughtful post Amie.

I won’t’ go into anything not already said. I think it’s a fine line because many people DON’T suffer from serious conditions such as yours but have eating disorders and use abstaining from these foods as excuses.

I know you mentioned the pasta too…the question I ask though about the carbs – you said you would eat it if it weren’t gluten. But I would venture to guess that if this place offered gluten-free pasta, you wouldn’t take it or rice, etc. And that’s your choice and what you want. As long as people can be honest and recognized their intentions.

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Amie September 30, 2011 at 3:37 pm

Thank you Jen. So great to hear from you. I am sorry that there are people out there who use the excuse as a disorder. For myself, if I could eat the pasta I would but at this time I am unable to digest all grains therefore I would not be able to order any pastas. Hopefully some day soon I will be able to eat pasta! Im staying positive and hoping that day is soon. Gave a great Friday.

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Nizzy September 30, 2011 at 2:47 pm

Amie, THANK YOU!!! I want to send this to all the people who have made comments about my small frame and pick at me when I order certain foods at a restaurant. I’m not trying to be skinny, I’m trying to feel healthy. I WISH could eat some of the things other people eat.

I have always been a picky eater and think it all goes back to my not being able to eat gluten but just now realized it. I used to say, I don’t like that because it gave me a stomach ache. I used to eat donuts every once in awhile at work, but now that I have to cut out gluten from my diet, I have to say, “No thank you.” It really hurts my feelings when people say, “Why not? You should have 3, your too skinny!”

Thank you again! You made feel so much better for saying, “No thank you!” :)

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Amie September 30, 2011 at 3:30 pm

Thank YOU! It is so great to relate to other women facing these crazy things….isn’t it? Thank you for making me smile and for your comment. I am so happy to have heard from you. Happy Friday! Xo

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Amie October 2, 2011 at 6:17 pm

Thank YOU darling; so great to hear from you! Your comment has made me smile and I thank you so much for expressing your thoughts and sharing your words with me. It makes me happy to know that I’m not alone out there and there are other strong women out there facing similar comments. We need to stick together and stay strong! Thank you again, you truly made me smile.
xo

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Maggie September 30, 2011 at 2:54 pm

Ahh, bless you Amie. Thank you for opening your heart and sharing this so that many of us can feel a little better about where we are on our journey. I’m so happy that you’re feeling better and I know you’ll be able to eat nut butter on rice cakes soon enough :) xooxxo Have fun in Dallas!

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Amie September 30, 2011 at 3:28 pm

Awe you are great! Thank you so much Maggie! Xxxooo Have a fabulous weekend. Wish you were here in Dallas. Muahhhhh

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bethany September 30, 2011 at 11:18 pm

best post ever :) (not that i don’t love your recipes!) but it was so great to read. i’ve been GF for 5 months now, and testing dairy-free for only 2 weeks but am going to see if i need to continue that. i can’t easily digest non-fermented soy either, so avoid most of that too. even with the GF part I get looks and rolled eyes and skepticism … and “no WONDER you’re a stick” kind of comments. glad you can let it roll off your back now, and i hope your healing continues steadily! my sister and several other friends are on Gaps, which is pretty restrictive too and it’s really hard to be with my mom now because she takes our intolerances as criticisms of what she serves now, and what she fed us as kids … it’s hard to convince her otherwise! but onward to health :).

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Jenn October 1, 2011 at 8:30 am

What is Gaps?

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bethany October 1, 2011 at 9:18 am

Hi Jenn, Gaps stands for Gut and Psychology Syndrome, and is basically a diet that goes in stages in order to rebuild your gut flora from scratch, many stay on it for 2-3 years but report all kinds of healing (allergies, autism, etc.). Starts with bone broths and some boiled veggies, and goes from there. Details are here if you want to read more : http://www.gutandpsychologysyndrome.com/gaps-diet/

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Amie October 2, 2011 at 6:09 pm

Thanks Bethany; love hearing your wisdom…xoxo

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Amie October 2, 2011 at 6:14 pm

Awe; I love you! You are so kind and thoughtful! I miss you; thank you for all of your support. I cannot honestly thank you enough for being such a loyal reader and for your thoughts and prayers.
Love you.
xoxo

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Patti (PJ) October 1, 2011 at 9:09 am

Hi Amie! I hate to admit this, but I think I messed up. I have been receiving an e-mail every time someone commented on your site, which was not my intention. I just wanted to “follow your site.” Anyway, I am hoping that I did not quit subscribing to your very informative and interesting blog. I would like to receive notices about your posts, but not the comments from other readers pertaining to your site. (No offense meant to your other readers, I sometimes like to read others reactions, but would like for that to remain at my own discretion. Thank you. I hope I can continue to glean from your experience.
God Bless,
PJ

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Amie October 2, 2011 at 6:11 pm

Patti,
Thank you; no offense taken. Just make sure that when you leave a comment that you uncheck the box that says ‘send me follow up comments’. You are not subscribed to my blog according to my dashboard, therefore you can just sign up and you’ll receive the blog posts in emails. Thank you; have a great night!

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The Healthy Hostess October 2, 2011 at 9:45 pm

You are so strong and amazing! You are an inspiration to everyone Amie!
Cant wait to catch up next week!

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Amie October 3, 2011 at 8:39 pm

Awe; thanks Al! You are so great. I am so excited to chat this weekend and honestly we need to get together soon and finally meet! I love ya; thank you for your comment and have a great night. xoxo

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anneliesz October 4, 2011 at 12:35 pm

You know there is something insidious afoot when people compare themselves to the people around them. This is what I was thinking as you shared your recent dining experiences above. Instead of listening to our bodies, sometimes what ends up happening is watching how the people around us respond to the situation and following suit. I have done it myself unwittingly and other times with presence of mind. And this probably has more to do with people who don’t know you than those who do and know that your laundry list of intolerances is very real and not just “being good”. Comparison to me is insidious because it keeps what makes us unique stifled and instead sometimes a point of contention. You and I have talked about this and about food intolerances and I guess what cropped up for me in your sharing your thoughts on this was how comparison seemed to be at the root and how understanding happens one conversation at a time particularly about food intolerances or allergies.

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Amie October 4, 2011 at 12:49 pm

Aweee; I was just thinking of you!!!! I miss you darling; thank you for your comment and for reading my blog. I love hearing from you and hope to see you in San Fran soon. xooxox Have a fabulous day and thank you again. Muahhhhhhhhhh So happy we’ve met and are working together!

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kristin October 4, 2011 at 5:19 pm

hey Amie,
love you as always, but just for the record- while your’s may be a little more extreme than ours- we are a family full of “it’s all in your head” trips to the doctor. Uncle Todd with his heart condition, me with chronic fatigue and my issued that I am in physical therapy for for the last 3 years now (9 years of chronic pain). I also, as common as diabetes is, people still know very little about it and what I cannot or (a bigger deal) actually can have. Most people are, yes, joking about the things you cannot have b/c they are ill-informed about intolorences like yours. With mine they freak out about the fact that I am eating something that, god forbid, their eight cousin’s great great grandfather couldn’t also eat 112 years ago!
this probably sounds a little snottier than it should,. for that’s I’m sorry–
point is everyone has something like this… yours just happend to be more extreme but you can handle that just fine. If not you wouldn’t have been given the challenge (cliche, i know), you wouldn’t have done the blog, the career, the magazine and so on… b/c there is plenty!

Love you so much
this is a just coz I love you and you’re not alone with all of this stuff
xoxo

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Amie October 5, 2011 at 6:56 am

Awe; thanks lovey! Great to hear from you and I miss you and the cousins so much. Hope everyone is well and hope to see you soon…maybe we can all get together around the holidays!
Thank you for your comment..you are so strong too.
Love you and have a great day!

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kerry d October 5, 2011 at 4:47 am

Love that you are sharing your story–complete with all the positives, negatives, and vulnerabilities. Your journey is such a gift to so many! Cant wait to see you soon!

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Amie October 5, 2011 at 6:53 am

Thanks Kerr! So great to hear from you; hope your travels are going well. I am so excited for you to be back in NYC soon and I cannot wait to hear all about it. Have fun and thank you for your comment.
Love you!
xooxox

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Shannon October 18, 2011 at 12:24 pm

Amie!
Not sure if you remember me but we graduated MHS together back in the day. I’m so happy that I found your blog and I’ve been pouring through it for the last hour.
Your blog, business, career, and drive is inspiring. This post is incredible and you’ve certainly had quite a journey with your health and food intolerance. For years I was training for half-marathons and triathlons and just generally active and healthy. Unfortunately, though, everytime I got about 2/3 of the way into my training I would suffer from tendinitis that really just wouldn’t go away. I can’t tell you how many races I’ve had to pull out of at the last minute because I’d be literally crippled. About three years ago I was seeing a chiropractor who was treating me for a double shoulder impingement, inflammation in my knee, neck pain, and ankle pain. Something was obviously really wrong and I had labwork done. Come to find out I’ve got Lyme Disease and it’s chronic.
I was prescribed 4 different antibiotics that I had the pleasure of taking for 4 months straight. My pain went away but it was temporary. For the last three years I’ve cycled back and forth between feeling good and having flare-ups. During flare-ups the only option was a longer protocol of antibiotics than the time before. The months of antibiotics left me with a raging case of leaky gut and just feeling overall icky. I found a doctor who worked with applied kinesiology, food intolerance, and supplementation and it made all the difference. Your fridge, recipes, shopping lists, etc. all look exactly like how I lived for the better part of a year. Because I don’t have an immediate negative response when I introduce foods back into my diet I have unfortunately gone back to my “old” habits and after a year of that I’m paying the price.
Right now I’m home “sick” from work as I’m suffering from a Lyme flare-up and I’m in chronic pain. When you talk about how those at your corporate job thought that it was “all in your head” I know exactly how that goes. Reading this post and your blog has given me the hope and inspiration to go back to what I know is right and what I know will heal my chronic pain.

Thanks for that and keep up the incredible work!

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Amie October 18, 2011 at 12:32 pm

Awe; thanks so much Shannon. Great to hear from you and of course I remember you! Thank you so much for your kind words and for your comment! I am so happy to hear from you. I hope you feel better and I will keep you in my prayers. I know you will get better soon; keep your head up and stay positive.
xoxo
Aims

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Mary October 19, 2011 at 5:09 pm

Ame,

Love your blog and i’m so glad i found it. I am one year gluten-free and enjoy finding websites with recipes and other people’s stories.

Unfortuantely, my villi is still atrophied after one year. And, although bloodwork has come down, it too is still slightly elevated.

I live in Connecticut and wonder if you the M.D. you mention in your blog (specializing in toxicity and stomach issues) is near to Connecticut?

Thank you!

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Amie October 19, 2011 at 8:37 pm

Thank you so much, Mary; great to hear from you! Thank you for your comment. So sorry you are still not feeling well; have you tried probiotics? I took VSL3 for 6 months and it helped me. My M.D. is Dr. Jeffrey Morrison of the Morrison Center here in NYC. He is AMAZING and so kind and listens and is wonderful. Let him know I sent you to him; he is a great guy and a truly caring doctor.

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Julia March 27, 2012 at 8:14 am

Dear Amie,

I just discovered your blog a week ago and I have been going through it and it is wonderful!! I had to comment on this post because it spoke so strongly to me. I have had similar experiences. I’ve discovered my own intolerances to rice, certain sugars, and also alcohol (except for beer in small amounts. it is the least sugary). When I eat these, I get back stomach aches and also skin problems. However, I know that it doesn’t end there and I must have some other intolerance because sometimes I still feel those symptoms, subtly or not-so-sublty. I am definitely visiting your M.D. because I’d love to fully know what my body is telling me. It’s so amazing and inspiring to hear your experience! So many people think I am reserved and need to just “live and have fun” because I don’t drink alcohol. But like you said, I choose not to drink it because it doesn’t alter my mood in any way. It simply makes me sick. I’d rather “live and enjoy” with a nice quinoa meal! Yuuum :) That’s why I am trying to eliminate more and more and sticking to a diet similar to yours to just figure out what my body likes and what it doesn’t and hopefully I’ll find my version of clean living!

But I just had a question–so can you eat Kale? Was your long sickness caused by Kale or was that specific kale unwashed or something? When are you done with the chelation? From then on, you can slowly start to incorporate gluten and dairy again? Wow that’s so amazing that you found a solution!! Congratulations and I am excited for you to be able have a wider choice of food, seeing as food means so much to you!! Thanks so much again Amie!!

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Amie March 27, 2012 at 3:05 pm

Thank you so much for your beautiful words and thoughtful comment. You just made me smile and I am thrilled to hear from you! I agree with you as I cannot drink alcohol and it doesn’t even phase me anymore- I don’t miss it one bit. I can eat kale and have started to add in some dairy but very slowly as it still bothers me. I am finished with chelation and it was an interesting process. I learnedcan so muchI and amI feeling so much better. Thank you again for your amazing comment. Have a fabulous day and hope to hear from you again soon! Xxo

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Diane Eblin-thewholegang April 16, 2012 at 6:48 pm

Amie, wow that was a great post. You put what so many people feel into words so well. It’s wonderful. I’m going to share this so others can see this is real. I’m working with a client now who was told it was in her head and it’s just sad that some medical professionals can’t see past their prescription pad. I am glad to hear you are healing but I’m not so happy to hear about the cheats. I hope you will re-read this and see that this special amazing person should not have to go through the pain when you know it’s coming. Give it more time before you try those old foods again. There is nothing that tastes as good as feeling good feels. I’m on a similar journey but I have more foods I can eat. I think you are amazing. Thank you for sharing.

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Amie April 16, 2012 at 6:51 pm

Awe; you are so great. Thank you so much, Diane. You just made my night. I love you for just commenting; I am a huge fan of you and your work and it means so much to me that you took the time to read this post and comment.
Have a wonderful night and hope to meet you in person soon!
xoxo

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Katherine April 16, 2012 at 7:04 pm

Thanks for this. It was just what I needed to read at just the right time after having to explain why I couldn’t have just a “tiny bite” of a birthday cake. Sometimes I think that others think I enjoy having these restrictions. But come on, who wouldn’t want to be able to eat with abandon. It just isn’t in the cards for me and if I’m good with it, then they should be, too. I promise to never tease you if we end up on a plane together. I may even share some of my avocado. :)

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Amie April 16, 2012 at 7:07 pm

Awe; I wish we ended up on a plane together! So great hearing from you Katherine. Hope you enjoy my recipes and blog; have a fabulous night! xoxo

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Monique M. April 16, 2012 at 7:25 pm

Thank you so much for this post! I’m also one of the thousands (millions?) who aren’t properly diagnosed for far too long, who get accused of having “all-in-your-head-itis”… it’s so frustrating. I’ve also got multiple food allergies and intolerances and I still don’t know why (celiac that went undiagnosed for too long?). But you’re right, at first, one of the hardest things is dealing with other people’s snickers, snide remarks, and downright rudeness. It downright sucks. And you are also right that we learn to not let it get under our skin.
That’s great that you found a doctor that can help you!
Thank you again for this post. It’s always nice to know that I’m not alone.

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Amie April 16, 2012 at 7:43 pm

Thank you Monique; LOVED hearing from you! So happy to hear from you and it’s great to know that we’re not all crazy and there is an answer out there. I look forward to hearing from you and hope you enjoy my recipes (hope you can eat them with your food allergies). Enjoy your night, darling. xoox

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sandy April 16, 2012 at 7:59 pm

WOW – thank you so much for posting this! The past 6 mths I’ve been going thru the allergy tests etc to figure out what was causing dizziness. I can’t eat eggs/dairy at the minimum and shouldn’t really eat some other foods. It’s so hard going to restaurants. Changing my diet caused acid reflux (I think it is that anyway). It really is so hard. And going out with family or friends is always tough with my 20 questions of the server about what is in the food!

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Amie April 16, 2012 at 8:30 pm

Thank you Sandy! So happy to hear from you and I am so sorry to hear you have been struggling, as well. It’s not easy but keep your head up; things will get better!
I’m happy to help in anyway I can.
Have a wonderful night and thank you again for your comment!

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Elizabeth (Foodie, Formerly Fat) April 16, 2012 at 9:09 pm

I’ve struggled with food addiction my whole life. There are foods that I have to avoid so that I don’t get sick in my mind and in my emotions. No one other than other food addicts understand that me not eating a slice of cake at a birthday party isn’t about me being “good” or “overly dramatic” or “difficult” or any thing else people have said to me. I’m just trying to keep my mind healthy. It’s very lonely.

About six months ago I discovered that my son (who is 4 now) is gluten intolerant. No one believes me because he doesn’t show the gastrointestinal signs of the “allergy”. Instead he manifests all the neurological signs that western doctors don’t consider real or measurable. But I know. I’ve seen a change in him since we changed his diet and took him off gluten. He’s healing and I have to ignore the naysayers because (although this may sound arrogant) he’s my child, he came from my body, I know what I know.

I worry about him feeling “other” about food because there are so many things he can no longer have that he sees people eating. He’s only 4 after all. But, it gives me hope to read about all the other people out there living with food allergies and intolerances. Hope for myself, and hope for him.

Thanks.

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Amie April 16, 2012 at 9:18 pm

Elizabeth- such a delight to read your story. I feel your pain and I hear you darling! You are not alone out there…there are so many people that just don’t ‘get it’ because they can eat anything and it can be frustrating and upsetting…believe me; I live in Manhattan where everyone loves eating out and drinking and there are times when I wish I could join them but we just have to be thankful for what we have and the fact that we are alive and living our best lives helping others.
Thank you again for your comment; have a lovely night and don’t loose hope. Stay positive.
xox

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Shut Up & Cook June 19, 2012 at 11:22 pm

Lady…you’re an inspiration. And screw the people that don’t get it or live in too small a world to respect and appreciate that you need to do what’s right for you. I say bravo.

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Amie June 20, 2012 at 9:09 am

Awe thank you darling. You are so kind! Great to hear from you. Xxo

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Kandace M June 19, 2012 at 11:38 pm

Thank you for sharing. Being yourself no matter what, and sharing your story. You can’t go wrong listening to your gut instinct.

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Amie June 20, 2012 at 9:09 am

Thanks Kandace! I greatly appreciate your support and so happy to hear from you! Enjoy your day!

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Elke June 20, 2012 at 3:37 am

Hi Amie, this is Elke from health coaching Paris in Paris, France. I have been following your blog and twits attentively by simply just loving your recepies. I had no clue the story behind! I am really really sorry for the pain you have to go through and the restrictions you have to live by, and I admire you for the courage and for standing up for yourself! This is very inspirational and motivating! Thank you for sharing , even I personally do not have to battle with food intolerance, I always worship a healthy lifestyle, living by “your body is a temple”. I never had any major health issues, and have always been very active, but the past year I started to suffer from huge fatigue. It got so bad I barely feel getting up the couch. Now I had to say, I am a full time working single mother of a 6 year old fantastic, energetic boy and you don’t know how bad I felt always to tell him I am not able to play with him because I am always tired. I finally made it to the doc and I am having an iron deficiency – a very big relieve for me, something to fix. But I made some major life changes: I gave in my letter of resignation and will have my last day of work July 31 to become a full time health coach ;-) it is risky, I still have bills to pay and a little hungry mouth to feet, but I feel so relieved with my desicion and confident this was the right choice. Again thank you Amie for your inspiration and your bravery and positive attitude to see the light at the end of the tunnel. Where there is a will, there is a way! Much love from Paris, xo – Elke

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Amie June 20, 2012 at 9:11 am

Awe thank you Elke!! Congrats on your new amazing career! I am so excited for you and so glad we connected via twitter. Keep up the amazing health coach work and enjoy your summer!
Xxoo

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Beverly Milley June 28, 2012 at 6:18 pm

AMIE,
YOU KNOW I FOLLOW YOUR BLOG DAILY YOUR STORY IS AMAZING AND THEIR ARE SO MANY OF US JUST LIKE YOU. PEOPLE WHO HAVE NO PROBLEM WITH FOOD INTOLERANCE JUST DON’T UNDERSTAND. I SUFFERED ALMOST 2 YEARS BEFORE I FOUND OUT WHAT WAS WRONG WITH ME LIKE YOU I WAS TOLD TO SEEK PROFESSIONAL HELP BECAUSE THEIR WAS NOTHING WRONG WITH ME, IT WAS ALL IN MY HEAD. WELL I KNEW HOW SICK I FELT AND MY HUSBAND TOOK ME TO THE HOSPITAL MORE TIMES THEN CAN COUNT. THE STOMACH PAINS AND THE NAUSEA AND I WAS GIVEN MEDS AND SENT HOME WITH A BUG. THIS WENT ON FOR SUCH A LONG TIME. BUT NOW THEIR ARE SO MANY THINGS I AM NOT ABLE TO EAT BUT THAT’S OK BECAUSE I RATHER NOT HAVE STOMACH PROBLEMS. CELEIC IS VERY SERIOUS AS YOU KNOW AND I CAN’T GO OUT AND ENJOY RESTAURANTS ANYMORE BECAUSE I AM ALWAYS THINKING OF SOMESONE MAKING A MISTAKE THAT WILL COST ME TO BE SICK. MY HOME IS GLUTEN FREE AND I CARRY MY FOOD WHERE I AM GOING. THIS IS SAD BUT I HAVE TO DO WHAT WE NEED TO DO TO BE HEALTHY. YOU ARE A WONDERFUL PERSON AND YOU GIVE ENCOURAGMENT TO PEOPLE LIKE ME. THAT THERE IS HOPE IN THE FUTURE THAT THINGS CAN CHANGE. THANK YOU HAVE A WONDERFUL EVENING. YOUR PICTURES ARE GREAT.

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Amie June 29, 2012 at 8:55 am

Awe you are too kind. Thank you so much for your comment Beverly it means so much to me that you shared your thoughts and it’s great to know there is a huge support system out there for all of us.
Have a great weekend.
xox

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Valerie July 16, 2012 at 6:37 pm

Amie- Although- the indefinite restrictions from foods sounds awful! Reading how you handle it, that sounds so sweet. To me the rhythm of preparing in advance foods to snack on that you know will nourish and make you feel energized and happy sounds like quite the blessing. Having an avocado instead of plane food also sounds fabulous! (Although, I haven’t tried plan avocado yet it sounds better then what I remember eating on my flight to Germany) Really- all the home made food sounds so much more special and romantic to me then any restauraunt made food :) Really, though I think what is actually so wonderful about your story is that you have discovered what works for you!

It is so hard to figure this out. Especially, with all the different information flying at us trying to get us to eat such and such or to not eat this. Even then- we are all different too! What works for me might not work for everyone.

Your story is so eye-opening to me. I’ve struggled with food so much over the years, impart I think because I do actually have slight intolerance to things, but much more because I have no idea what do with it… So- it gets mixed up in my confusion about anything in life. Food is a mental battle more then a physical one for me… so it’s good to see another side of the issue.

Again. Thank-you so much for sharing this! <3
And I am wondering how exactly did you find the doctor that finally helped you? How do you know that eventually you will be able to reintroduce certain foods back into your life?

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Amie July 16, 2012 at 8:51 pm

Valerie,
So nice to hear from you! Thank you for your kind words as I greatly appreciate your comment and support as well as sharing your story! I agree- there is so much information out there on packaging, advertising, etc. that tries to lure us into fun foods when they are filled with chemicals and processed ingredients. I found my dr (Dr. Jeffrey Morrison of the Morrison Center in NYC) via his Public Relations firm- they reached out to me via my blog asking for an interview and when I spoke with him I told him my story and he was kind enough to invite me in as a patient!
Have a wonderful night and thank you again. Your comment means so much to me.
xox

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Lindsay October 18, 2012 at 12:02 pm

Thank you for sharing your story! Some people are so thoughtless. It goes to show we need to stop judging each other and focus on living our own lives, putting that energy into making a healthier safer future. Sure there are people who eat the way you do to diet, lose weight etc. But even still, why should I care? I don’t live in their body. Our environment (including toxic chemicals) plays a big role in the health of our bodies, so when will we start to prioritize cleaning up our environment?

Thanks for sharing this, and I love your photos. You’re beautiful, inside and out :)

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Amie October 18, 2012 at 2:49 pm

Thank you so much Lindsay; you are so kind. You just made my day, darling! I agree completely and I am so happy to read your comment. Thank YOU for your kind words and inspiration. xoox

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Sharon November 29, 2012 at 4:22 pm

Amie, I don’t even know where to begin… During my daily visit to Facebook today I just happened to look over on the righthand side of the page at the ads I always ignore. There was one titled “Premier Allergy.” I said “nah” to myself, but something made me click it…and there was a link to one of your recipes. I had a spark of hope deep down, but my thoughts were filled with, “probably just another thing I can’t eat.” Then I clicked on your “About” section and found this “My Thoughts” piece. I am moved to tears!!! You have no idea how much this means to me. To give you a brief idea…I am 32 years old, and I have spent most of my life with what was called “stomach trouble,” with “attacks” and some substantial chunks of time being very sick with “random” symptoms all over my body. Finally at the age of 30, after having my son, my world came crashing down and I ended up extremely sick…to the point of being bedridden. During the other very sick periods in my life I would see nothing short of 10 doctors with NO answers. I was afraid this time would be the same, and it almost was. After 15+ doctors (some more than once), every blood test/lab/screening imaginable…no answers… Sent home 25 pounds lighter in 3 weeks, being told there was “nothing wrong.” I was not going to give up and die…especially now that I was responsible for another life! I immediately started a Candida-like diet, and then I found an “off the map” MD, and that is when I started getting some answers. First, I tested positive for Lyme Disease…which is basically an auto-immune disease that attacks all systems of your body . I was devastated and lost…but I have clawed my way back bit by bit and learned so much about my body along the way. My next step is testing for heavy metal toxicity, but I have to get up the courage to take the sulfa-drug (I have always been allergic) to do it. Lyme overtaxes your system so you can’t detox properly and along the way can cause multiple allergies (mine are not just to food but environmental as well). I have continued on the diet for the last year and a half, but I feel imprisoned by it, and as you so beautifully articulated, nobody “gets it!” It is extremely challenging to live a “normal” life, but I started getting out more and more with my cooler in tow. It seems like when I try to eat something a little different my body freaks out, so I am not sure where to go from here, but your website has been a ray of sunshine in my monotony. Thank you for sharing yourself and giving this gift to others. I really started to feel like there was no one else out there just like me… Sure there are plenty of vegan sites, or gluten-free, or dairy-free sites, but I am in a place where it is easier to tell people what I CAN eat versus what I can’t, because it is a shorter list…this coming from someone who used to eat anything and everything! I used to live to eat, but now I eat to live. Sorry for the ramble, but I just can’t say THANK YOU enough!

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Amie November 29, 2012 at 9:13 pm

YOU are amazing! You made my night, Sharon; thank you so much for your comment. I LOVED hearing from you and I will help you in anyway I can. I am not a doctor but I am more than happy to help you with some of the things that helped me! I am on my last round of chelation and staying strong. I still have stomach pains from time to time but I stay strong and keep going! Try some meditation, I love doing that now and it has helped me so much. Try to quiet your mind and take deep breaths; you will heal. I KNOW you can do this and YOU know you can too. Tell yourself that YOU CAN do this. Keep your head up high and stay strong. I am here for you anytime in anyway I can. Please keep me posted on how you are feeling and let me know what I can do to help you. Sending you HUGE hugs from NYC wherever you are. Love ya, girl. xoox Keep your head up. There IS an answer. My doctor here in NYC is amazing if you would like to see him! xooxox

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Sharon November 29, 2012 at 10:51 pm

You are TOO SWEET, Amie! I am SO THANKFUL that I found YOU! You provide so much hope and inspiration! Your note has touched me and made more tears flow. I said to my husband, “She doesn’t even know me, and listen to what she wrote,” and his reply was, “Actually it sounds like she knows you better than almost anyone!” It is so true! Only people who have been through something like this understand. I am SO GLAD you are doing better! I am, too…and I thank God every day for that. I am not where I would like to be, but I am thankful that I am not where I was! I do visualization, meditation, deep breathing, etc. with a hypnotherapist (and at home), and that has helped a lot. I also do acupuncture, moxa, saunas, etc. I am willing to try it all! I am also on lots of vitamins/supplements, which seem to help. I have a team of people I see…an MD, an herbalist, a naturopath…then I do a lot of trial and error based on what they tell me and how my body reacts, or my intuition. One of my biggest hurdles is staying positive and truly BELIEVING that I WILL heal! Thank you for lifting me up and reminding me! You are obviously a very special person! I feel like I made a best friend with one fateful mouse click today. Sending you lots of love from Boston! TAKE CARE! XO!

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Amie November 30, 2012 at 12:04 pm

You are too kind, Sharon! Of course I’m here to help you. You can always leave me a comment and I’m happy to help. You can find me on Facebook and Twitter and Instagram too! I know you will heal; I know you can do this and so do YOU! Keep that beautiful head UP high and stay strong. Two years ago I was on disability and was in such pain- I’m living proof that you can kick the pain killers and drugs- listen to your body and find a MD that specializes in Integrative Medicine to heal YOU and not cover up your symptoms with a band-aid.
Love ya girl; you are my new online buddy!
xoxoox
Stay Strong!!!

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Casey December 22, 2012 at 1:23 am

Amie, wow. Thank you. I just found this post online, and I am now reading all your blogs. This post is so inspiring. I have a gluten intolerance, dairy intolerance, don’t eat red meat, pre packaged foods, and I think I am allergic to soy now too. I have now just been diagnosed with epilepsy (as of today,) and I am hoping to find a way to control it more with diet. The way you said that them not believing you hurt more than the pain, that hit me hard. I know exactly what you mean. You are a strong woman! Thank you for the strong words and inspiration!
Xoxo

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Amie December 22, 2012 at 9:38 am

Thank you Casey; you are so kind. So great to hear from you; stay positive! You are strong, too and you can get through this.
xoox

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Bonster January 23, 2013 at 10:57 am

I’m going through a lot of the similar digestive/food problems you are, Amie. I found it interesting you can handle Greek yogurt and a few cheeses. Same here – milk contains two proteins, casein and whey. I can’t tolerate whey (milk, ice cream, cream cheeses, etc.), but *can* tolerate casein (Greek yogurt, hard cheeses). Cottage contains both, but “farmer’s cottage cheese, if you can find it, is all curds (casein) and no whey. Good luck and hope your “gut feeling” gets better all the time. :-)

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Amie January 23, 2013 at 11:00 am

Thank you so much! Great to hear from you. I actually haven’t had yogurt since this post because it started bothering me again….I cut out dairy again because I was experiencing stomach pain and bloating that was too much to handle. My body keeps changing and I’m still healing so I greatly appreciate your comment and kind words. I’m hoping to be able to have some cheese and yogurt soon! Have a great day!!

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Linda C. January 26, 2013 at 8:49 am

I found it really interesting that my grandson is autistic and his school has recommended that he stay glutin, soy, peanut, dairy and sugar free for concentration and focus.

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Amie January 26, 2013 at 11:43 am

Thanks Linda; yes I work with many autistic children who are all on a gluten, soy, peanut, dairy and sugar free diet and have seen huge improvements!!

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Jera January 27, 2013 at 7:42 pm

Your blog was sent to me as a link via email. For the past year I have been struggling with extreme left sided abdominal pain and enlarged lymphnodes all over my body. I have seen just about every sort of MD and I’ve even been to the Mayo clinic. Everyone assures me that I will be back to normal in no time. Well enough is enough. I have given up my wedding, a spot in a great nursing program. I’m not sure if you had enlarged lymphnodes or not. But I know you struggled with pain. Mine is so bad I haven’t been able to work for an entire year. I was just wondering if you could suggest where I could go to get tested for food and environmental allergies or sensitivities. I am despite to get back to some sort of “norm”. Thanks for your time! Your story was so inspirational

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Amie January 27, 2013 at 8:09 pm

Thank you so much Jera; I didn’t have enlarged lymphnodes but I am happy to recommend Dr. Jeffrey Morrison in NYC of The Morrison Center; he is great and does lots of testing. Tell him I said hi; he’s a great person and a wonderful doctor! Feel better and stay positive!
xoxo

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Tiffany January 28, 2013 at 10:15 am

Oh girl, THANK YOU! It’s so good to know there are others out there… though I guess not for your sake ;-) I’ve been suffering this way for years, and unfortunately am also deathly allergic to a lot of fruits, veggies and most spices as well. Within the next year we should be moving to Europe from the southern US (Where they can’t find anything “really” wrong with me) and can’t wait to be able to eat a bit easier. It is a great frustration when people try and help by giving you “healthy” options thinking that’s the point and you still can’t have it. I even had a lady at the deli the other day tell me that I really shouldn’t be using a deli after asking her to wipe the blades down because of spices from previous cheeses. She told me to get packaged. Really? I had to go into the whole explanation about starches and such.
Thanks for venting ;-)

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Amie January 28, 2013 at 10:22 am

Tiffany, so great to hear from you! Keep your head up. I’m happy to help you anytime I can. I agree completely with what you are saying and just stay positive and keep your head up. Everything will work out and you will heal. I struggle from time to time still with my health and sometimes it seems no one understands. I feel your pain. xoox
Have a great week and remember I’m here anytime!!

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Dorie January 31, 2013 at 3:17 pm

So nice to hear someone who sounds like myself. I had migraines for 35 years until a wonderful Dr convinced me to eliminate a ton of foods. And it works. I can tie any migraine now to eating out someplace new. I thought I was a healthy eater all my life. Even a vegan in my 20s. But, for me, it was a lot more. I can’t eat any nuts, yogurt, soy, mushrooms, onions, almost all cheeses, many fruits, caffeine, anything artificial, preserved, yeast, sweets. I CAN have gluten. So I eat a lot of salads with a fresh, plain protein. I eat dinner for breakfast most the time. But I am migraine free. Yeah!

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Amie January 31, 2013 at 3:23 pm

So glad you are feeling great Dorie; it’s all about feeling good and eating what makes you feel great. Thank you so much for your comment! oxox

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Carole January 31, 2013 at 8:03 pm

Have you read JJVirgin’s diet book? She recommends that you give up the 7 foods that cause most problems for 3 weeks to determine which ones affect you. They are soy, peanut, corn, dairy, sugar & all artificial sweeteners, gluten, and eggs. After that you introduce each back one a week, keep a food journal and determine what you are intolerant to. Hope it helps.

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Amie January 31, 2013 at 8:28 pm

Thanks so much Carole; great to hear from you!I haven’t read this book but I’ve heard of JJ Virgin’s work and I already avoid all of those foods but thank you so much for your comment! Have a great night!

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Laurie February 7, 2013 at 2:47 pm

Hi Amie,

I have suffered with “intestinal issues” for years. My internist said I have Crohn’s disease and/or gastrointernitis?? How would I find out if I may be allergic to gluten, soy, dairy etc.? I do not take any meds but simply make it through my “incidents”. I would greatly appreciate any advice you may offer to me. Have a blessed Day!

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Amie February 7, 2013 at 2:57 pm

Thanks Laurie; I would recommend seeing an Integrative MD who can run tests on you for those foods and also do an ALCAT food sensitivity test on you. Integrative Medicine focuses on healing the body without using drugs so it may be a good option for you. Wishing you good health and sending you lots of hugs. oxoxx

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Anne-Marie April 13, 2013 at 8:27 am

What a great post. Our infant daughter has a genetic defect called Glutaric Acidemia Type 1 (GA-1), and she is unable to eat proteins. Now she’s on a special formula, but as she gets older, she’ll have to be on a strict diet as well. It’s encouraging to see someone who has a lot of dietary restrictions thrive. And while what you have and what she has are completely different, I have come to realize a lot of folks have dietary issues and they can be fine. She’s actually doing quite well on her current mixture of formula and tolerating proteins so much that they are increasing them. Her strict way of eating, even at this young age, has made me look into healthy eating for myself and so I stumbled upon your blog. Thanks for your encouraging attitude!! Best to you :)

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Amie April 13, 2013 at 10:16 am

Thank you Anne-Marie; so great to hear from you! So glad to hear your daughter is doing well and I wish you all the best. Have a wonderful weekend and thank you again so much for your comment! Hope to hear from you again soon!
xoox

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Susi April 16, 2013 at 7:52 pm

Amie, Thank you for this beautifully honest blog on living with food intolerances. I recently found out I am missing the same gene you mentioned and have been gluten sensitive for about 8 years, and now avoiding sugar, all grains, gluten, and trying to avoid potatoes. And legumes. Found a great Naturopath who lives in Nyack, NY. I think I had a TIA in December, which led to a hospital visit, lots of tests but no answers, and now myND and chiropractor have been helping so much. I am 52, but want to start a new career in something related to holistic health after my experiences! Keep up the good work!

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Amie April 16, 2013 at 7:59 pm

Awe; thank YOU Susi! So nice to hear from you; thank you for your comment and for taking the time to write. You are amazing and I do this for people like YOU! So great to hear from you; thank you again.
Have a wonderful night!

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Mallory W June 28, 2013 at 1:08 pm

This was one of the most beautiful and possibly life changing blog posts I have ever read. I commend you for your strength and persistence in being an advocate for your own health. You are truly a role model and someone I highly respect. Bravo!

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Amie June 28, 2013 at 1:09 pm

Awe thank you Mallory!!!!

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Emily @ Glitz Glam Granola August 17, 2013 at 3:38 am

I wish I could convey what a blessing discovering your blog was for me tonight. I saw a link on Pinterest to your Cinnamon Bread recipe and went to check it out aka scour the ingredients list to determine whether it was something that would actually fit into my food restrictions. I have all the same as you, and recently I’ve tried to reintroduce nuts… Big mistake as I’ve had killer abdominal pain all over again. The fact that you have been there (the pain, the medical maze, all of it) meant so much to me and even more as I am having an especially “bad” day. At 25 I have been diagnosed with fibromyalgia and have had to go on disability at work as well- something people just don’t understand. My parents are amazingly supportive but my friends and family just don’t understand what it’s like to be sick all the time and how hard it is. All the countless doctors appointments, trying different meds, nutritional supplements, alternative therapies- that alone is exhausting. But reading your words felt like reading my own and it comforted me to know that I am not alone. I took a break from my blog because I’ve been too sick and I didn’t know how to address all of it but you are such an inspiration. Can’t wait to read more about your journey and how you are doing now- very well I hope. Thank you again for your words- it truly was exactly what I needed to hear.

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Amie August 17, 2013 at 12:10 pm

Awe; thank you Emily. Sending you the BIGGEST hug. xoox

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Daw October 17, 2013 at 11:34 am

Wow – you can eat avocado, asparagus, and brocolli! How did you figure out the sulfites? I’m getting ready to start a rotation diet, because am still sick after eliminating 25 foods. Might make a deal with the devil to be able to eat more fruits and veggies safely. I do believe it’s in my head, and blood, and bones, and skin…and that the foods were making me mental…crazy, and depressed. For years, was told to go on a anti-depressant, in my heart didn’t believe it was right. Started eliminating foods at 25, and now am 50. This year, eliminated soy lecithin (all lecithins in food actually) and yeast extract (before I knew what they REALLY were) and most processed foods. And after a couple months, I could tell my brain and body were changing. Now I found you- thank you for sharing everything.

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Amie October 17, 2013 at 7:36 pm

Thank you Dawn; so great to hear from you! Hope you are feeling better!!!!

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Julie C. December 17, 2013 at 4:38 pm

Hi, I just found your blog today and this is the first entry I read. Your post is truly inspiring and really hit close to my heart. I also suffer from multiple severe allergies and intolerances. I wish I had had your grace and knack to speak up for myself in MANY situations and not let such ignorant comments affect me so easily. You give me the courage to start trying to do that now.

Thank you.

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Amie December 17, 2013 at 4:49 pm

You just MADE my day Julie; thank you darling. You are so kind. Sending you hugs from NYC. Thank you for your kind words. So happy you found my site and I can’t wait to hear from you again. Stay Positive!!!! Keep believing and remember, in every situation choose LOVE over fear. You can do it. oxoxx

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Francesca December 26, 2013 at 11:56 am

Just found this post today. Beautifully put! I also frequently get the comment, “I wish I had your food issues/stomach so I could lose weight!”
I usually answer, “And I wish I had your stomach”.
Its usually shocking enough to change the subject. My health problems caused me to loose weight, and it is so socially unacceptable for a woman to want to gain weight. You really find out who your supportive friends are when illness strikes!

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Cheryl January 10, 2014 at 12:00 am

Ya know, Amie, I just stumbled into your blog. And you blew me away. I read a few of your posts and its as if I was led to you. I know the distance from others that food issues can cause; I understand the isolation, and the strange looks, people rolling their eyes, “There she goes again, looking for attention” type of comments, the impatience from other diners with me, and from the waiters as I ask them questions, trying to find something on the menu that is edible for me. I understand trying to travel with this issue, always ordering (and many times paying extra) for the little fridge in the room, and then not being able to go down to the breakfast buffet because its loaded with soy filler in the sausage, and gluten-filled waffles, toast, and pancakes. Then you see someone take a couple of pancakes and then they use that same spoon or fork to dip up their scrambled eggs, and you realize they have just contaminated the eggs with gluten.

I have gluten intolerance that has led to wide-spread, system-damage for me, causing such goodies as Atrial Fibrillation (eating gluten causes me to have heart palpitations, which can lead to an AFib attack, which can lead to strokes). Macular Degeneration appears to be developing in one eye, and I am losing my hearing (which a regular ear doctor simply blamed on my age (66) without even doing any tests . Gluten has damaged my thyroid (leading to the AFib). It also can cause cancers because of the damage it does to one’s body, which leads to a damaged immune (lymph) system (I had a lumpectomy for DCIS breast cancer last October). I can’t tolerate many foods: dairy, legumes, cruciferous vegetables, certain grains, soy; the list goes on. And even tho I am greatly changing what I eat, it seems there are more and more foods I cannot tolerate, perhaps because giving up the gluten has made other intolerances that I’ve always had, become more identifiable as being from something other than gluten.

But, your blog has helped me see a light that was glimmering somewhere in the back of my mind. After reading about your “dad issues”, I was able to let the issues with MY dad go. He’s been dead since 1990, and I’ve been furious with him since way before that. Tonight, I was able to see that he, also, did not “get me”. He couldn’t; he just couldn’t because he was so wrapped up in himself.

You were right in that day’s blog: its not worth me wasting tears (and all these years) living in pain for someone else’s issues. THEN, I saw that its also not worth it when I use my anger and pain (at whatever issue, not just my dad) to take out MY issues on others. Like you said, “Life is simply just too short” for that. My answer? Forgive them all. Just forgive them all…and forgive myself. You have helped me see this; one of the biggest stumbling blocks in my life. Now, finally, I can begin loving myself. Now, finally, I can see where all the health issues are a bass-ackwards blessing, and I can let go of the anger over those, as well. Finally, I can appreciate myself for what I truly am: a spiritual, caring person who has simply been confused about how to find that road less taken.

Hubby and I are in a smallish Midwestern town, but I am going to try to find the type of specialist you are going to. The regular doctors here have also told me its in my head, its my age, its because of menopause, etc….any excuse they can think of to cover up the fact that they have NO clue what the medical issues really are; they do not “get it.” They have laughed at me, accusing me of getting all my information off the internet, totally looking down their noses at me because I dare to educate myself against their stupidity and ignorance. They treat me as if I am stupid, totally not understanding that I, too, attended college; I really do know how to look up reliable information. One of the gut doctors even told me in a very snarky way that my symptoms were NOT related to gluten and that I had “obviously” gotten my info off of an herbal website (I’ve never in my life looked at an herbal website for info on gluten sensitivity); if my multiple symptoms are not related to gluten intolerance, then why did the AFib symptoms go away when I went totally off of gluten?

But, I see now that it doesn’t matter what those (so-called) doctors thought. I’ve known all along that I needed another type of doctor, but had no clue who to look for. Now I know where to aim my search.

I just wanted to thank you so very much for your efforts. You ARE making a difference, a HUGE difference. I am finally figuring out love over fear (and anger). You have let me know that its OK to be just exactly who I am.

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Amie January 10, 2014 at 12:19 pm

Thank YOU so much; you just made my entire WEEK! Thank you for everything!!! I am so happy to hear from you and people like you make me smile. Thank you for your kind words and your support. Sending you a HUGE hug from NYC. Have a fabulous weekend, Cheryl! xoxx

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