Lyme Disease


After 6 years of being misdiagnosed by every doctor in the country I researched more about Lyme Disease and didn’t believe my false negatives that I was getting from my blood work. I never had a tick bite, I never had a rash or a bulls-eye that most people think signals Lyme Disease.  Actually 50% of Lyme Disease patients never get a rash or a bulls-eye or see a tick on them! I had random symptoms that came and went so I thought it was all in my head or that I was just sore from my workouts and walking around NYC all day long. People often attribute the symptoms to stress, aging and the aches and pains of daily living so I didn’t think twice about it.

The scariest part about Lyme Disease is that it looks like Many other diseases and doctors often don’t realize this since the bloodwork often comes back negative for Lyme in many patients that actually do have Lyme. The symptoms change every hour and every day so it’s hard to pin point what’s going on and many doctors spot treat actual organs that are being infected instead of looking at the big picture that Lyme Disease is actually attacking all of your organs.  Lyme causes fatigue, headaches, ringing in the ears, anemia, dizziness, brain fog, joint and muscle pain, tingling, numbness and burning sensations of your extremities (fingers/legs/toes), stiff deck, depression and anxiety.

I work with Dr. Richard Horowitz who is based in Hyde Park, NY and has treated more then 12,000 chronically-ill patients with Lyme disease. Many of his patients not only suffer from Lyme Disease but many other tick-borne infections such as Babesia, Bartonella, Mycoplasma, Chlamydia, Rocky Mountain Spotted Fever, Borellia Hermsii, Q-Fever, Anaplasma or Ehrlichia. For many people the usual treatment for Lyme Disease of 30 days of an antibiotic does Not cure them because you can’t just kill all the bugs in 30 days. It takes LOTS of heavy metal removal, hormone balancing, enhancing the immune system and detoxification. These ticks are literally dumping toxins into our bloodstream causing many symptoms and organ damage so it’s quite difficult for a doctor to spot an accurate diagnosis. Many doctors mistake Lyme for an autoimmune disease such as multiple sclerosis, ALS, Parkinson’s disease and Rheumatoid Arthritis or they’ll say you have depression, Chronic Fatigue Syndrome or Fibromyalgia. I was at every doctor and hospital getting a new diagnosis and was put on steroids, pain killers, water pills and never felt relief. I had symptoms that came and went, good days and bad days and joint/muscle pain, tingling, numbness and burning sensations that traveled to a different part of my body every day.

As I mentioned above, conventional blood tests from the labs we are all used to going to for regular blood word are highly unreliable for Lyme Disease and other tick-borne infections. I had to learn this the hard way- after 6 years of pain and people telling me I was crazy and nothing was wrong with me, I started researching Lyme and discovered other labs that are specialized in Lyme Disease. I used Stonybrook Labs and IgeneX labs who are both in California because they can detect at least two common strains of the organism. These labs are expensive, but what I’ve learned these past few years is that if you want accurate information, you’re going to have to go to the labs that are not in-network. The same goes for doctors. I wasted years of my life going to in-network doctors who only made me even more sick that I was- It wasn’t until I started researching other doctors who take the time to get to the root of the issue that I was able to start healing.

Another note worth sharing is that many doctors recommend eating a gluten-free lifestyle to lower the inflammation in your body. If you need ideas for gluten-free recipes, check out my Recipe Page.

If you think you may have Lyme Disease, I recommend finding a doctor who is well versed in Lyme Disease and specializes in this illness, such as doctors who belong to ILADS. I work with Richard Horrowitz in Hyde Park, NY who is an amazing doctor and has truly healed my Lyme disease. According to Dr. Horrowitz, author of the book: Why Can’t I Get Better?, he states “The blood tests for Lyme have been shown to be unreliable. Doctors have been taught to do a 2-step blood test, using an ELISA test followed by a Western Blot to establish the presence of the bacteria but these tests have been shown to be very insensitive and often miss at least half of the cases of Lyme disease. There are also over 100 strains of borrelia in the United States and over 300 strains worldwide; there is no commercially available test that picks up the presence of all of these different bacteria. The Lyme organism can hide from the immune system where the standard antibody tests fail to pick it up.”

It is essential to work with a nutritionist and an Integrative M.D. because I am sharing general information that is not intended to be medical advice. This information is only given for informational purposes. Dr. Richard Horrowitz has been an incredible resource and doctor to me and has healed my Lyme disease. I admire him as a professional and as a person- he is smart, very talented and incredibly dedicated to the well-being of his patients; I am very grateful for having him as my doctor.

{ 11 comments… read them below or add one } August 19, 2013 at 9:50 am

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Phyllis October 22, 2013 at 12:07 pm

I know the frustration all too well as I was diagnosed with Lyme 13 years ago after a year of being misdiagnosed. I thought I was dying. Luckily I found a rheumatologist in Manhattan who had Lyme and he diagnosed me immediately.
His suggestion of eating gluten-free helped a lot to conserve energy, and although I am experiencing a flare up now, I am eating clean to minimize this episode.
That’s how I found this website! And it’s amazing!
No one understands Lyme and how if affects a person unless you have gone thru it or know someone who has. It is truly awful.


Amie October 22, 2013 at 2:16 pm

Thank you Phyllis; so nice to hear from you. Glad you are feeling better! Have a great day! xooxx


sue lester November 12, 2013 at 7:00 pm

Hi my name is Sue.
My question is- can someone have symptoms of a tick bite 20 years later. I was bitten by one in Hungary 25 years ago, it was attached and filled with blood, it was removed in hospital.
Could someone have Lyme disease after so long.
I to have been to so many doctors and diagnosed with fibromyalgia, chronic fatigue. Some days i cannot get out of bed. I sweat alot, i have really bad swelling of the legs, i am overweight quite alot.
kind regards sue, i live in Australia.


Amie November 12, 2013 at 8:07 pm

Thanks Sue; yes you can still have symptoms 20 years later. That is usually what happens to SO Many people that I know. They get bit when they are young and never see a bite/rash (like me) and then they have symptoms silently for a long time until their 20′s/30′s.
Hope that helps!
Try to avoid gluten, dairy, sugar and soy. Eat lots of veggies, healthy fats and organic foods!!


Kate January 28, 2014 at 11:12 am

Hi Amie,

I’ve come across your site a few times but only recently saw your posts about Lyme disease, leaky gut, and the spate of issues that follow! I was diagnosed with Lyme about 3 years ago but probably had it for a year or so before I was diagnosed. After similar frustrations with western medicine that was destroying my stomach and leaving me more tired than before, I turned to doctors using more holistic approaches that incorporated healing my body. I’ve been gluten free for 6 months now but recently found out that I have a mthfr gene mutation that makes me unable to process folate (which is present in many things that also have gluten). You mentioned a similar discovery for yourself in one of your posts and I was wondering how this discovery affected your eating habits (and nutritional supplements). I’ve been looking into healing my leaky gut using a variation of the GAPS diet (without as heavy of an emphasis on meat) and from there seeing if it’s possible to slowly reintroduce gluten into my diet since methylated folate will help my body process the folate. Since you seem to have more experience than me in chartering the rough waters of lyme disease, co-infections, leaky gut and the host of food allergies accompanied with all that, I would love to get your opinion!
This journey has taught me so much about the effects of food on my body and the importance of feeding yourself based on nutrition and what your body needs! I’ve loved it and it’s led me to so many amazing food bloggers (including yourself) going through similar issues who are providing inspiring and creative recipes. Like you’ve said, there is a silver lining!
Thank you for your blog!


Amie January 28, 2014 at 11:28 am

Thank YOU Kate; so nice to hear from you. stay positive and keep your head up. Yes I am on many high quality supplements from Xymogen to restore my gut since I wasn’t able to absorb any nutrients in my food because of my leaky gut, cdiff and lyme. Your dream will come true; keep trusting in the universe. oxo Hugs!!!


Rhonda Hopper February 27, 2014 at 7:01 pm

Hello, I was just recently diagnosed with chronic Lyme Disease. I have a Lyme Disease specialist as my Doctor. I was curious about your treatment. I am allergic to all antibiotics, so I am taking 4 different herbs. I will have to take them for a year. I am balancing my hormones and I am on a strict diet. I feel better with mild exercise. Were you able to take antibiotics? Is there anything else I can do to heal? Thank you!


Amie March 1, 2014 at 11:34 pm

Rhonda; great to hear!!! Congrats to you; that is so exciting. I used many herbs and supplements from my Integrative Dr’s. I had to heal my leaky gut first and parasites/etc. before I could heal my Lyme. I’d make sure you don’t have other issues going on that are also effecting the Lyme. Thank you!!


K B March 29, 2014 at 7:51 am

Just searching for gluten free recipes and came across your blog. You don’t know how much this means to me. I have chronic Lyme disease and was told it was “all in my head” for my entire life. What hurts the most about being misdiagnosed, I past it onto my 3 children(congenital Lyme) I have bookmarked your blog and look forward to coming to it for recipes, healthy tips and inspiration. THANK YOU


Amie April 5, 2014 at 4:13 pm

Thank you so much KB: great to hear from you. ENJOY! xoxxx


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