My Battle with Lyme Disease & My Favorite New Snack: Coconut Cranberry Almond Butter Rice Cakes

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DSC_0920   I’m not a complicated person- I’m not fussy. I’m not difficult.

I’m not a brat.

I’m not picky.

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Not at all. Take me to a football game, I’m happy. Take me to a boring play, I’m happy.

But my body isn’t. My body is complicated. My body is fussy. My body is difficult. My body is a brat. My body is picky. Very picky.

And it’s pretty frustrating when all I really wanna do is enjoy a new Manhattan restaurant or go hiking up the Rocky Mountains.

But it’s not that easy.

Because, well I’m just pretty gosh darn complicated.

I have hypothyroidism.

I have leaky gut.

I have heavy metal toxicity.

I have an IGA Deficiency.

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I have candida.

I am allergic to gluten, dairy, soy, corn and numerous fruits as well as certain oils and sugar.

And now, the latest…

Last month, I was told…

I have Lyme disease.

My life is complicated. That’s simply all I can say at this point.

Dating is hard.

Explaining myself is hard.

Trying to figure out why my body hates me is hard.

But I just stay positive and keep my head up high.

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Because there’s a reason for all of this…

Yes, I believe there is a reason that I am going through all of this. There is a reason for why my body is complicated. There’s a reason I spend 10 hours of my day just taking care of myself like an infant- detoxing, healing, soothing and nurturing my body- when all it does is react back to me in a negative way.

I’m honestly hoping this is the end of my diagnoses. I am hoping my treatment for Lyme Disease makes everything better. I am praying that I will soon be normal. Feel normal.

To be able to go out to eat. To be able to go out on a nice date. To be able to worry a lot less about how I’m going to feel the rest of the day, the week, the month, the year.

I’m really hoping.

And I don’t ask for a lot.

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Truly, I don’t.

But I’m asking Santa for an early Christmas gift this year.

Because I just can’t take another diagnosis.

I’ve received countless letters from all of you these past few years and I love having all of you in my life. I’m sharing all of this with you today because I care deeply for each of you- even though I don’t know many of you personally. I care about your health and your well-being and that’s why I started The Healthy Apple- to help you and to heal myself on this journey that I have been on the past 7 years.

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I’ve learned so much and I’ve healed many parts of my body. But the healing has just begun. I’ve started treatment for my Lyme Disease and I’m not giving up. I’m eager to learn about this disease, to heal myself and to help all of you and everyone else who’s bodies are attacking them. I’ve learned that my Lyme Disease has been in my body for almost 10 years and has been trapped within the Biofilm of my stomach. I find it amazing that I never had a tick bite, a rash or a bulls-eye yet years later, this disease has wrecked havoc on my body in so many ways.  This is all very new to me and I am on a Biofilm protocol to kill off the pathogens and heal once and for all. Seems like the reason I haven’t completely healed 100% is because of this Biofilm and how it’s not letting me heal. I will be sharing my Lyme and Biofilm treatment with all of you soon but for right now I will not be sharing any information and I hope you understand that. I welcome your comments but please know I will not be sharing information until I learn more so that I can help all of you. I will be creating pages on my website dedicated to Biofilm and Lyme to help others who need the support.  In the past, my Lyme Disease results were all NEGATIVE. I’ve learned that it takes going to the best of the best labs in the country and spending thousands of dollars out of pocket to get a true diagnosis. Just another sad issue about our whole medical profession. Just to think that this Lyme Disease is what was causing me to be sick all along and now after 10 years of suffering … I’m just learning this. The saddest part is that I had to figure this all out on my own. No doctors ever suspected this or found this until I researched and dug and dug and dug for more information and learned what tests I should be doing.

I haven’t yet shared this Lyme disease Diagnosis with anyone other than my parents, my sister and two of my best friends but I felt that I need to tell all of you. Because I am an honest person. I’m not complicated. I’m not fussy. I’m not picky. I’m just me.

Little me. Healing and living.

And never, ever giving up.

Ever.

xox

4.9 from 13 reviews
Coconut Cranberry Almond Butter Rice Cakes
 
Prep time
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Gluten-Free, Dairy-Free, Soy-Free, Vegan & Vegetarian
Author:
Recipe type: Snack
Serves: 2
Ingredients
  • 2 brown rice cakes
  • 3 Tbsp. organic almond butter
  • ¼ tsp. coconut flakes
  • 2 Tbsp. dried cranberries
  • 1 Tbsp. finely chopped fresh basil
  • 2 tsp. pumpkin seeds
  • ¼ tsp. fresh lemon zest
Instructions
  1. Lay rice cakes on a flat surface. Spread almond butter onto each rice cake using a knife. Top with remaining ingredients.
  2. Serve immediately.
Notes
Servings: 2 Serving Size: 1 cake Calories: 221.2 cal • Fat: 12.4 g • Protein: 5.2 g • Carb: 23.6 g • Fiber: 5.2 g • Sugar: 2.3 g • Sodium: 62.8 mg

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134 replies
  1. Heidi - Apples Under My Bed
    Heidi - Apples Under My Bed says:

    Oh Amie! My goodness you are so strong! What a beautiful, heartbreaking post but hopefully the beginning of better health. Better days. You deserve it, that’s for sure. I am sending you strength and healthy vibes and all my support. You are amazing.
    Heidi xo

    Reply
  2. Jessica
    Jessica says:

    Much love to you Amie for your tenacious positivity and your love for everyone you meet even in the midst of physical pain and frustration. You are one strong soul.

    Reply
  3. Mer
    Mer says:

    You are seriously the strongest person I know. Not many people could go through everything you have gone through and keep going the way you do, creating delicious recipes, working your tail off, sharing your story to help others, taking care of yourself and still making time to ask how everyone else is doing. At a time when you can stop trying and just say why me, you continue amaze me and so many others with your strength and dedication to your work, friends and family. Keep it up Amie Jo, you’re almost there : )

    Reply
  4. Ricki
    Ricki says:

    Amie, it sounds cliche to say it, but you are SUCH an inspiration (to me, and all of your readers). I agree with Mer above–the strength you demonstrate daily, both in spirit and determination, is incredible. If anyone can beat this, you can. I, too, hope this is the final diagnosis for you, and the one that finally allows you to heal and get back to “normal” (well, maybe not *really* “normal”–that would be boring–but “healthy”!!) :D
    Hugs & love to you! xoxo

    Reply
  5. Lauren
    Lauren says:

    I did a double take when I saw this post pop up in my Facebook feed. I am a rising high school senior. I was diagnosed with Lyme disease and two other parasitic infections in November of 2012 but I have been sick for the past 7 years. This disease is a mess and I get how frustrated you must be feeling right now. It is frustrating to have been on treatment for 7ish months and only see small signs of improvement. But those small
    improvements are more than I have seen in years! Before that, I was continually declining. So try to stay positive! Lyme has turned my life upside down but it has also given me something to work for-I am now completely determined to help people because no one should have to go through this.

    Also, if you haven’t already, I really recommend reading Cure Unknown by Pamela Weintraub. It’s long but I though it did a very good job explaining the controversy surrounding Lyme.

    Reply
  6. Charissa
    Charissa says:

    I have also had most of these diagnoses. I honestly think they are all pretty popular diagnoses for us with on going chronic issues and even for some with more minor issues/symptoms. I’m figuring it all out slowly but surely! The best thing I have done is not let any of the diagnoses define me or join Lyme groups because most of them are filled with negativity and false information.

    I truly believe these things happen for a reason as well. It is a complete blessing in disguise if we let it be. It gave me something to be passionate about and guided me down a path towards self love and deeper enlightenment. Good luck! Stay strong and know you will be well because you will!

    Look forward to hearing more! :)

    Reply
  7. Laura Gay
    Laura Gay says:

    I have hypothyroidism too. And take meds for it :(. Can I ask if you take pills or have you found better way to treat it? Thanks

    Reply
  8. Katie
    Katie says:

    I’m so sorry to hear about the Lyme diagnosis, Amie! I had the same problem with my diagnosis. No warning, no rash, and my body just kept revolting against me. My joints hurt, my head hurt, everything upset my stomach. And 4 years later, I was finally diagnosed. I was on antibiotics numerous times, for varying lengths of time until finally, 2 years and multiple negative tests later, I no longer felt the need to get tested regularly. Even though I was on probiotics throughout, I still ended up with awful issues with my stomach. Doctors call it IBS. I think it’s more like BS. Finally, finally, a doctor tested my levels of yeast, and they were all sky-high. We got those under control, and everything has been far better since then. I have flare ups from time to time, but at least I know how to better manage them when they do happen! I hope your treatment goes well and that it helps solve some of your issues!

    Reply
  9. Christin
    Christin says:

    Wow! Reading this makes me frustrated for you. Knowing it has taken 10 years to diagnose something like Lyme disease. BUT…like everyone else has said, you are an inspiration. I have been dealing with some gut issues since this last October which put me out of work and struggling to find the right foods to eat and energy to do anything. Lot’s of tests later, still no answers, and still having issues. Going through this whole process and reading about your experiences has taught me no matter what happens, and how hard it is, it’s so important to stay on the bright side; and know that there is a way to find help.

    Thank you for sharing.

    Reply
  10. Aggie
    Aggie says:

    Wow Amie, I want to give you a huge hug. I really had no idea, and I’m sorry for that. I love your attitude – everyday – regardless of your obstacles and challenges you are facing. You are seriously an inspiration. I hope you get your early Christmas present :)

    And I wanted to tell you, my latest obsession has been rice cakes with nut butter and fruit preserves. Perfect afternoon snack :)

    Reply
  11. Kristyn
    Kristyn says:

    I have been on a similar path and know how frustrating it can be. I actually ended up discovering that Lyme was not my primary issue, but most of my symptoms and the rampant inflammation that was making life miserable were actually caused by mold illness (I was being exposed at home and at work) and the Lyme, viruses, parasites, etc. were just opportunistic infections that had been lingering deep in my body, brought to the surface by a traumatic experience and the subsequent mold exposure. Have you heard of Dr. Horowitz? He’s an NYC-based physician who specializes in Lyme and is highly regarded by Dr. Klinghardt and his team in Seattle (my saviors on this journey). I just wanted to mention him in case this information could be helpful to anyone looking for answers. I know that for me, it has been life-changing to feel like I am in good hands.

    I am 25 and have been sick for 3 years; I often feel like I am watching the ‘best years’ of my life fly by. While friends are dating, falling in love, traveling the world, getting married, and having children, I am spending everything I make on doctor’s visits, treatment protocols, supplements, and organic food. It feels so unfair at times. My mom has been my rock and the greatest source of support on this journey. It sounds like you have some close friends and family to help you along the way. I think that’s so important.

    I hope you find the answers you’re looking for and that peace and healing fill your body, mind, and spirit. God bless you and good luck!

    Reply
    • Emily @ Glitz Glam Granola
      Emily @ Glitz Glam Granola says:

      Just saw your comment and had to reply- I’m 25 as well and it’s so hard to feel like this is what we are spending our”best years” doing and looking at Facebook or Instagram makes me feel so alone sometimes in what I’m dealing with. Somedays it’s hard to stay positive but I know we will make it through this and be better women for it!! I’m so thankful for my mom too- I can’t imagine not having her thorough all these difficult years. I think our best years are yet to come!!

      Reply
  12. Patryce A. Smith~PhD
    Patryce A. Smith~PhD says:

    Hello Amie,
    Myself having had many, many diagnoses over the years understand the ‘frustration’ you are having with the medical professionals. That is why I decided (after 4 degrees from Purdue) I would get my PhD in Natural Health at the age of 62 in 2011. It takes patience and perseverance for sure to uncover the ‘real-inner’ issues that are keeping one’s body from homeostasis for sure, as you know. By sharing with others this will help your healing journey and others to keep on exploring all of the healing paths to better choices for health promotion. Congratulations on your staying power and now with your protocol progressing (hopefully with a ND on your health team) I wish you health & healing!

    Reply
  13. Kim
    Kim says:

    Like I said in my email, you are force of endurance and determination in the face of all of these struggles…truly an inspiration. Thank you for sharing your story and for being so real and honest. A lot of similar stories here. Sad how misunderstood Lyme is. Sending you good health vibes and loads of positive energy. Xo

    Reply
  14. Linda
    Linda says:

    Amie,
    I have only just recently found your blog, but I am so glad that I have. I have been battling with adrenal fatigue and the myriad of problems that stems from it (hypoglycemia, low blood pressure, fatigue, digestive issues, poor immune function, over reactive allergies, not to mention mental health issues…etc!) for over 2 years, but only just recently got the proper diagnosis and help from an integrative MD. It’s difficult to find people who are dealing with similar issues online that share them with such honesty and positivity as you do. Your posts give me a boost of positive energy and hope. I am also glad I found you because once I started eliminating tons of foods (digestive issues as well), I was despairing of what I could eat despite all the limitations. I am sorry about this new development in your health saga, but perhaps this is the missing piece of the puzzle for helping you truly heal. I am also awaiting lab results for Lyme disease, and if they are positive, at least I’ll know where to turn for suggestions and support. You are a lovely human being, don’t give up. Your light shines through your posts and really touches your readers. I also believe that everything happens for a reason, and have been trying to work through these difficult times by learning to adopt a more Buddhist perspective – of living one day at a time, or learning to let go of attachments and plans. Meditating, praying….being in the moment. I totally feel your frustration about wanting to live a “normal” life. I feel like I’ll never meet another guy again – I’m always at home!! And always having to say no when people offer you food, or having to eat before going to a restaurant…Some days are better, some days are worse, and it’s like a roller coaster ride; never knowing whether you’ll be up or down. I had so many dreams for when I finally finished university, and ended up just burning out at the end of it all! I am really impressed by your ability to create a blog, take wonderful pictures, create such delicious, beautiful, healthy recipes despite having so many food restrictions, and also making a business out of your healing process by helping others heal. I really admire you, and all you have accomplished, and your unswerving dedication to researching and learning about what can heal you when no health care professionals were doing it for you. Really, really badass. You never gave up. I aspire to turn my misfortunes into such a beautiful lesson on life such as you have.
    Thank you so much for existing. Sending you the most positive vibes and love from Montreal! :)

    Reply
  15. Lisa
    Lisa says:

    Amie,
    I know anything I say will sound cliche, however, speaking totally from my heart I want to express to you that you are such a special, unique lady and you have a HUGE purpose – to help us all. I am sorry to hear about this diagnosis, but you are such a source of strength, I know you’ll come out with flying colors. It’s been so amazing to work with you and get to know you, and I wish you all the HEALTH, healing, love and success in the whole world. YOU deserve it! xoxo Lisa

    Reply
  16. Cindy
    Cindy says:

    Amie,
    I have been reading your posts for a while and I really enjoy your recipes. I also have Lyme,Co-infections, Celiac disease (gluten and dairy free), blood clotting disorder (caused by Lyme), and chronic migraines. I was undiagnosed for 15 years and have been in treatment for 5 years. I am starting treatment for biofilms, but I dont tolerate a lot of meds due to poor detoxing by my body. I so understand all you are going through. Hang in there. You will learn a lot more than you ever wanted to know.
    :). Healing thoughts coming your way.

    Reply
  17. Maisie
    Maisie says:

    Lots of love Amie!
    It’s so sad that so many seem to be going through such health struggles and missing out on so much. And yet, it seems you are getting more from life than so many people who may have it all but never fully experience/appreciate it. Life is now and you seem to do well at living the joys that come your way. It means, I’m sure, that there will be an even greater depth to the joys to come.
    This site you have created is such a source of positivity and healing and shows you have that in abundance within you.
    Perhaps Louise Hay / Lissa Rankin could be helpful in the process of further nurturing this healing energy and allowing the problems and illness to dissipate…?
    May you find whatever help you need.
    Good luck <3

    Reply
  18. Andrea
    Andrea says:

    Amie,

    Thank you for living out-loud – it is a light to so many…. There is always some meaning in our experiences and having gratitude will get you to your intended place every time…

    It sounds like your are incredibly strong person with great support… So stay the course and keep the road. I have spent the last 5 years supporting my daughter in her struggle to find the answers to her bodies incredible complexity and it turned out to be Lyme Disease. Just this past week she stepped out of the house and has started back to work part time… It is a huge gift that has come with much much work, huge cost and never-ending commitment to keep looking…

    This has been a very very long and at times incredibly frustrating journey for all of us. And while the journey is not over, I know by that by never giving up my daughter has found what she needs at the present time to step forward – AS YOU WILL – and diminish the limitations that this diagnosis has had on your life.l!!!!

    We benefited from many many professionals – some of whom have been suggested in previous comments. However, it was not until we addressed the Biofilm issue and she crafted a diet that has started to starve the biofilm that her healing truly lunged forward.

    We are on this planet to help support other’s journey so by all means please feel free to contact us.

    Reply
  19. Melissa Green
    Melissa Green says:

    Hi Aimee,
    I am so sorry to hear that you have yet another diagnosis, but you are right when you say you just have to stay positive! The work you do is so beneficial and inspirational.
    I work for a doctor who is a chiropractor and nutritionist and does A LOT of work with lyme disease patients. He follows Dr. Klinghardt and uses applied kinesiology to test patients, and one product he always recommends to help get rid of the biofilm is Cistus Tea: http://www.retailbiopure.com/Cistus-Incanus-Tea-500g.html
    Let me know if you have any questions- I’m happy to help!
    Melissa

    Reply
  20. Maggie
    Maggie says:

    Amie I love you. I am sorry that you’ve been so let down by the medical system. But I am so happy that you’ve finally got a diagnosis. And I’m so happy that you believe so much in yourself – if only everyone did! Thank you for sharing this with us. Your honesty and willingness to share is going to help so many people. Soon you’ll be able to celebrate with cocktails on a rooftop in Manhattan – count me in. xoxoxo

    Reply
  21. Sandy
    Sandy says:

    You take what life has given you and provide an outlook that others are inspired by. Keep being strong and sharing a healthy lifestyle.

    Reply
  22. Meg
    Meg says:

    Hi Aime,
    I found your site about a month ago and have really enjoyed it. I don’t usually comment on things, but for this it’s a must. I completely understand your frustrations, and I just want to tell you that what you are doing for others, especially myself, is huge!! This post has just turned on a “lightbulb” for me. I was diagnosed with Lyme 15 years ago. I was treated with heavy antibiotics, and was told that was it, and that since it’s viral it would always show up in my blood work…end of story. Since that time, I have been suffering with fatigue, and extreme digestive issues. I was finally told it was IBS about two years ago. I struggle every minute of every day trying to “manage” it, and just wanting to be normal. I long to be able to take my kids on vacation, and be able to have a meal with them without stress. It’s sooo hard!
    Anyway, I never thought, and no one ever told me that it could all be related to the Lyme Disease, so I thank you so much for sharing your experiences. You’ve just armed me with information on how to help me heal, and that is priceless.
    Keep doing what you’re doing, you’re definitely not alone. I’m a believer in karma, and the good you are doing for others like me will all come back to you. It really will.
    Stay strong:)
    Sincerely,
    Meg

    Reply
  23. Allison
    Allison says:

    Thank you for sharing your story! I originally came here to enter to win the gluten free items because my grandma is gluten free and would love them, but I also got to read your story and it was beautiful! You are beautiful.

    Reply
  24. Janice
    Janice says:

    wow, that is quite a story to read. But despite everything, you are still living life to its fullest and making the most of it. Keep up the positive attitude. You are strong!!

    Reply
  25. Lisa
    Lisa says:

    Sad face…I was so sorry to hear about your Lyme Disease. That truly sucks…although I don’t have to tell you that. I’m glad they finally found it and am glad that you are finally receiving treatment.

    I too tested negative for Lyme Disease just last summer. I actually did have the bull’s eye on my leg although I don’t recall being bitten by a tick. When I sought medical treatment I wasn’t sure if it was a tick or spider bite. So no treatment was given, the rash went away but I’ve had mystery illnesses that have kept Lyme way at the back of my mind. I’m seeing the rheumatologist this week to check out what could be RA, Lupus, ankylosing spondylitis….or now, bringing Lyme back into my mind.

    So many times I have wondered like you, why does my body hate me! I have no answer either. But my body is complicated too. I have elevated rheumatoid factor and elevated blood sugar although I’m not diabetic. And I have a vitamin D deficiency. All that in addition to severe lactose intolerance, gluten allergy, seasonal/environmental allergies and those pesky hives that won’t resolve no matter what!! Yet some people still want to tell me it’s all in my head because my labs are “within normal limits”. At least my primary doc listens to me and is willing to let me see specialists. The endocrinologist suggested I see a rheumatologist and she also suggested I could see the alternative medicine specialists. (Yes, my insurance actually has alternative medicine docs which surprised me to say the least). I don’t run the “hallmark” fevers that supposedly come with RA, Lupus or Lyme disease…but I always run a core body temp a degree or two lower than the traditional 98.6. Do you find that too?

    Your suggestion of Digest Gold has been a good one and has helped my tummy lots. Thanks for that.

    As for you, I have been praying for your well being and will continue to do so. Like you so often tell me, keep your head up and keep fighting. Your website and blog have helped me so much and I really do appreciate all the things you do. I’ve spent hours on research so I can’t imagine what it has taken to get all the data you have for your website. Thank you. Like you, I will keep my head up and keep fighting. I just want to know what I’m fighting! For now I’ll be praying the treatments for your Lyme Disease work and you will be back to your spunky self. I’ll keep checking for your updates but thanks for being a voice and an advocate!

    Reply
  26. Katie
    Katie says:

    I’m really sorry to hear about your lyme disease! I haven’t been tested but I feel like there are other things wrong with me besides the gluten thing. You’re an inspiration to all of us for never giving up!

    Reply
  27. Shannon
    Shannon says:

    Thank you for being so open and candid. Your attitude and way of life is inspiring. You make the most of your diagnosis and are not letting it get you down, you are finding ways to spread the word and make things better for others too. This recipe of Coconut Cranberry Almond Butter Rice Cakes looks like a delicious and very healthy.

    Reply
  28. Michelle
    Michelle says:

    Thank you for being so honest and sharing your story. Best wishes to you on your journey to better health and happiness! Keep your chin up, focus on all the good!

    Reply
  29. Jessica Dennis
    Jessica Dennis says:

    I also have candida, a gluten and dairy intolerance, can not eat yeast, have leaky gut and metal toxicity! It is refreshing (and unfortunate) to know I am not alone and someone else is going through this, and understands what I’m going through too. It gets easier each week, I promise! Once my body started feeling better it got easier to eliminate and not crave certain foods anymore.
    This recipe looks great, I am going to try it tomorrow. I eat brown rice cakes and almond butter for breakfast most days, including this morning! Unsweetened coconut and pumpkin seeds are two things on my list I should be eating! so thank you for this, I am always looking for new and creative recipe ideas to keep my diet from getting to boring!

    I hope I win the Crave baking mixes giveaway, I would love to try a new mix!

    Reply
  30. Katie
    Katie says:

    You are very inspiring my dear sweet apple. Hang in there and overcome the Lyme disease. Because like you said maybe this is the cause of all your alignments, maybe you just found the answer!! Also, because you cannot eat this and that…it had inspired you to eat well, to eat clean. And in the process inspired hundreds to do the same and to have courage to overcome their alignment and confusion in the kitchen.
    On another note, I just bought hemp rice cakes yesterday…I haven’t purchased rice cakes in years. What a coincidence that you post an incredible idea involving rice cakes, almond butter and coconut! I’m thinking about exchanging the cranberries for acai berries! Hmmm.

    Lastly, your alignments don’t define you. Your mind, spirit, actions, and attitude do.

    Love love love stay strong stay great keep posting,
    Katie

    Reply
  31. Jenni
    Jenni says:

    I have recently discovered the amazing flavors of a rice cake topped with nut butter and fruit too! Definitely going to add some coconut to my next one…

    Reply
  32. Tami
    Tami says:

    Here’s hoping getting the Lyme disease under control will help other areas. After my gallbladder surgery about a year ago, I discovered I feel better eating GF. I love trying new GF flours. The Crave Bakeshop sounds yummy!

    Reply
  33. Heather Lee
    Heather Lee says:

    I also have a thyroid problem (hyper; graves’ disease). On top of that, I have had arthritis since I was seven, but diet has greatly helped with both. I avoid gluten, and I have been told I have Celiacs because of the pain I suffered when eating gluten! It really made me feel like my intestines were hurting.

    It definitely can be troubling to have a list of things wrong with you…. I have so many different symptoms and problems…. It never ends!

    Good luck to you with your laundry list of issues and symptoms; I hope you can at least make them bearable!

    Reply
  34. cindy
    cindy says:

    Thanks for all your wonderful recipes and finding the new mixes available. I am always so cautious about buying premade GF food. It’s so costly so I hate to waste the money on something bad…which I done plenty of times! Your recipes are wonderful, easy and so helpful!

    Reply
  35. Jessica @ OrganicallYou
    Jessica @ OrganicallYou says:

    I’m so sorry about your health problems! Oh my! Hope you are feeling 100% soon! Thanks for the awesome recipe, looks yummy :)

    Reply
  36. Karen D
    Karen D says:

    I wish you well on your journey to healing. I have to say that I’m in awe of the amount of work you do for your blog and via social media given all the issues you are facing. Best wishes.

    Reply
  37. Alyson Valpone
    Alyson Valpone says:

    Amie- you are the strongest person I know. I love you with all my heart. You will overcome all of this and be able to help those out there suffering just like you. Remember, God gives his hardest battles to his strongest soldiers.

    Reply
  38. Anna
    Anna says:

    Just today I was thinking that although I’d never choose to have an allergy or a food sensitivity, much less one that was unheard of most of my life (gluten), it forced me to learn how to eat well. It forced me to learn how to cook. It’s probably one of the main reasons for why I don’t struggle with weight problems, since there’s so much food that’s off limits, anyway. And it forced me to pay attention.

    Hang in there. Sometimes the strangest things end up turning into gifts. :)
    btw – rice cakes with Nutella and fresh slices of banana. Like a candy bar but not as bad for you!

    Reply
  39. Julia S.
    Julia S. says:

    I wish you the best, and that things will only go up from here!

    I never thought rice cakes were that appealing…until now. :)

    Reply
    • Amie
      Amie says:

      Awe; thank you Lori. This means so much to me. Thank you for taking the time to visit my site and for your kind words. Sending you hugs right back. Love ya, sista! xoxox

      Reply
  40. Marie
    Marie says:

    Amie,
    First, I echo everything your followers have posted – you are amazing, strong, inspiring, and a great encouragement to all of us with health issues that work to rob our quality of life. Your thoughts and feelings resonate because we understand the daunting task of living day to day with an all consuming health issue. After coming to a point where I could not take one more diagnosis, one more recommended supplement (I need a separate garage for these), one more form of treatment, I came across the many benefits of juicing. I have since decided that the power of greens on a daily basis is a MUST for me, sometimes more than once a day. I am believing that I am feeding my cells on a daily basis and that they will turn themselves around and get healthy! They are that smart! I will keep your condition in my prayers, and your steadfast spirit to overcome this! I’m not a doctor, but start juicing – there’s power in those greens, I’m convinced and seeing/feeling dramatic changes after only one month!

    Reply
  41. Emily
    Emily says:

    My body is complicated! My body is picky! I hear you girl! This post was powerful and so well articulated. Thank you. Also, I hope that you begin to find the healing that you are so longing for.

    Reply
  42. Caroline
    Caroline says:

    Hi Amie,
    It is so amazing that I have found your website. I have many of the same things wrong with my body too (hypothyroid, menopause, tick bites, insulin resistance, low metabolism, fibroid tumors, high uric acid and kidney stones, gluten intolerance, candida,and symptoms and side affects of all involved). I have spent more time researching and trying to feel better, than living. I have been going to drs for yrs with close but misunderstood diagnosis’. I wish I could scream sometimes when I feel as useless as I do compared to how I used to be. I am so behind you in all the things you write and have found. You are on my list of miracles! I have been adding vitamin C tablets along with tart cherry and magnesium calcium zinc D combo at night and staying on paleo eating and I feel like things are becoming hopeful. I am nowhere near good yet, but you are a strong inspiration and knowledgeable woman. I look forward to all your updates. THANK YOU

    Reply
  43. Sharon
    Sharon says:

    AMIE!!! I have no idea how I missed this, but I am JUST reading about your Lyme diagnosis NOW! I am here if you need ANYTHING. I have definitely found healing from Lyme, and I know a TON about it! Let me know if you want to chat. I am happy to help! Sending healing thoughts your way! XO!

    Reply
    • Amie
      Amie says:

      Awe; thanks Sharon! You are so kind. Thanks darling; I’m doing well and I greatly appreciate your support. Sending you a hug right back!!!! xoox

      Reply
  44. donna
    donna says:

    Amie- Knowledge is power and Im thankful you are sharing your story of lyme disease. I too have been diagnosed with lyme disease and a thyroid issue. I was fortunate enough that my family doctor felt the paralysis in my eye might be from lyme disease. I was also fortunate in that the test showed positive for lyme. I was treated with an initial dose of antibiotics that did relieve my aching joints and drooping eye. I have been involved in a Lyme disease meeting group and that has been filled with helpful information. I feel the best help for myself is to convert to a clean diet. Im sure that will also have a positive impact on my thyroid issue as well. So thankful I came across Amie Jo on Facebook :)
    wishing you success in everything!
    Donna

    Reply
  45. Caroline
    Caroline says:

    Hi, I found your website through the Odacite contest and this post really hit home for me. My dad had Lyme when I was a kid, and he was repeatedly misdiagnosed and ended up with a brain infection that led to permanent disability. Lyme is a tricky bastard to detect and treat, and I wish you the best! I know you have a lot of chronic health problems, but be glad that you have your brain! Holding you in the light.

    Caroline

    Reply
  46. Jill Powell
    Jill Powell says:

    Amie,
    Thanks for sharing your story – I, too, recently got diagnosed with Lyme after suffering for several years with many of the same issues. Thanks for being brave and sharing – I also have a real food blog but haven’t yet the courage to deacribe what I’m going through. But seeing other rave souls like you gives me encouragement! Check out my recent recipe for cinnamon macadamia butter; it’s my favorite ice cream replacement!
    http://rethinkingfoodforthought.blogspot.com/2013/11/5-minute-cinnamon-macadamia-nut-butter.html?m=1

    Reply
  47. Lori Leal
    Lori Leal says:

    I had no idea you have Lyme Disease. I do as well (along with all the horrible illnesses that tend to go along with it). Will post more after a clay bath :)

    Reply
  48. Alexandria Urgo
    Alexandria Urgo says:

    Hi Amie,

    I will say YES there is a purpose! Your time, story, & inspiration to never give up is what makes the human spirit so remarkable! I was diagnosed with Lyme Disease in 2006 & it went back & forth with depression & being all in my head. It wasn’t the easiest road, especially since one of the many symptoms was the severe fatigue (where watching tv felt like running a marathon) , to others, can’t be seen on an x-ray or MRI. I tried everything, but the only thing that brought me back was Chinese Medicine. I am very blessed to have had a seventh generation Chinese Medical Doctor, who also was an Oncologist & surgeon, really help me overcome the Lyme Disease with herbs. I was so grateful & inspired by my recovery that I went back & got my Masters Degree in Oriental Medicine so I can help others. I know I can’t help everyone but if I can prevent at least some people avoid the heartbreak of sitting in their car visit after doctor visit thinking if they really are crazy, like I did then it’s all worth it!
    Thank you so much for this recipe & taking time to share your story & a delicious looking recipe I hope to try soon!
    Many blessings!!!!
    Alex =)

    Reply
  49. jodi
    jodi says:

    WOW, amie…i hope you have had some good results with your treatments by now.
    i feel like having had cancer was easier than what you have been dealing with.

    we are all blessed in different ways. you have the skills of being a fantastic writer, researcher, and chef as well as being able to reach out to folks by sharing and connecting. your purpose seems to be to help others, and that is the highest vocation a person can be called to, for however long you can do it.

    when i was doing treatment, any small kindness from anyone at all would bless and significantly affect my day. you are that inspiration to others. every kindness matters. you are doing everything in your power to heal and help others and you are already a success just by continuing to do so!

    you have my heartfelt thoughts and wishes for your full recovery and my respect for braving–and beating down–the cold strong winds of doubt and hopelessness.

    carry on, for there is nothing better you can do. i can’t is not a viable option.

    best wishes,
    jodi

    Reply
    • Amie
      Amie says:

      Jodi, YOU just made my entire week! Thank you for your kind words. Thank YOU. Sending you a huge hug from NYC. So happy to hear from you and thank you for your positive energy and support. xooxoxx

      Reply
  50. Jennifer
    Jennifer says:

    Hello! I felt the need to post this because you all need to know you are not alone. I am a 23 year old female from New England. These posts are all so inspiring to me as I have just learned I have Lyme disease too. It is a constant battle getting out of bed each day just to wake up and feel absolutely miserable and want to go right back to sleep. I didn’t know so many other people were dealing with this same pain I am. It’s been 3 years going on 4 and I just found out I have Lyme disease along with coinfections., bladder infections, several developed food allergies and along with the physical symptoms , severe anxiety. Also I have had severe uti pain for the past year and a half on top of the debilitating gi symptoms. I can’t eat normal meals and I hardly ever want to eat at all. I can’t go out to dinner because of the anxiety and stomach issues. Actually, I can’t seem to go anywhere at all because of what lyme has done to my nervous system. It’s terrible. No one truly understands the misery lyme causes until it happens to them. I know I wouldn’t of until this disease infected myself. I have gone through 2 exploratory surgeries in the past two years along with spending thousands of dollars on medical bills that have not given me an answer. Feeling so alone I keep telling myself that I will get through this and I won’t be 35 and still sick with no husband or children. I sympathize with each one of you because I know how it is to feel so alone with no one who cares enough to understand your issues. I lost all of my friends and almost my boyfriend. I feel like I have to isolate myself from the world because of my embarrassing stomach and anxiety issues. Sex with my boyfriend is not possible due to the excruciating pain I am in all the time. My life as of some of yours, is not my own anymore. I have to carry around a bag full of medicines to work with me and take constant supplements and antibiotics daily. I am finally now starting the lyme treatment hoping and praying my symptoms will resolve or else I may lose my mind even more than I already have. Stay strong ladies. If I can do this any of you can and we will get through it together. I am not letting lyme take over my life. I will beat this and I pray for each of you who are sick that you do not give up. There are others out there who have it worse than us believe it or not and life is not easy but God only puts the strong people through a miserable journey like this. We must prove to him we are strong enough to conquer it and we will! Truly blessed to find this blog. It gives me hope. Lots of love to you all<3

    Reply
    • Amie
      Amie says:

      Thank you so much for your kind words Jennifer; my heart goes out to you and I am so sorry for your pain. Sending you a huge hug from NYC; please know you are not alone. We are all in this together. Hugs! xoxxx

      Reply
  51. Rachel
    Rachel says:

    HI Amie,

    I just came across your site as I was looking into the FODMAPs diet. Unfortunately I also have lyme and bartonella which could also be causing many of my issues. I was diagnosed almost 2 years ago after being sick for over a year. I am still struggling to find treatment protocol. After a year and a half on antibiotics I had my pic line removed and I am doing Buhner’s Herbal protocol. It is all so complicated. Lyme causes so many issues in a persons body. I am sorry to see that you are having so many issues as well, but it is strangely comforting to see that I’m not alone and there are wonderful people such as yourself providing valuable information based on personal experience. Anyway I wish you the best in your treatment and if you have any questions I have been through a lot with lyme treatment and know more than I could have ever wanted to. I have a great Lyme Doctor in Minnesota.

    Reply
  52. Meredith
    Meredith says:

    Hi Amie,

    Thank you for sharing your story. You are a remarkably strong woman and my thoughts and prayers go with you that you will find a cure and an end to diagnosis.

    I was looking for a possible connection to gluten allergies and lyme and found your blog. I too have had a lot of the same symptoms and the list is growing. I don’t remember always feeling like this, it’s a change in the recent months. Like you I’m trying to be strong and just accept this is my body and that I need to take care of it and ease it through each day. Life is hard, relationships are impossible, work is impossible sometimes…but life does have to go on. I’m searching for a cure and have not yet been diagnosed with lyme, but given that it’s affected 90% of the people in my hometown I’m certain I have it.

    I was wondering how you found out you had lyme. Is there a particular dr. I need to see or specialist? I am desperate and in need of a cure to this. I’m in my twenties and every day is a struggle to get up and have the strength and energy to do anything. It’s hard to eat, most things hurt my stomach and I have arthritis now that makes me feel like I’m fifty years older. Is there a cure to this? Please if you have found out anything or have information I am eager to know how to proceed. My email is Mlstaudenraus@gmail.com. I would welcome any suggestions. Reading this blog, your experiences and those of others is truly wonderful. I thank you and everyone for sharing this. God give us all strength to face and conquer this. -Meredith

    Reply
    • Amie
      Amie says:

      Thank you SO much Meredith; so great to hear from you! Check out my Lyme Disease page on my website- all the labs and tests are there. They are both in California. Stonybrook is one and there is another that is better. Look into both and have your bloodwork sent there- Quest and Labcor and other labs gave me false negatives for years.
      Hugs from NYC.
      Keep your spirit high.
      oxo

      Reply
  53. Meredith
    Meredith says:

    Hi Amie,

    Great to hear back from you. I’ll look into the Lyme page on the website. California? :/ That’s terribly far away for me. Is it possible to have test results sent there from another state? Thank you so much Amie. I’ve run into the problem that when nothing comes up in blood tests I’m told it’s all in my head. It’s so hard to hear that when I know how my body feels. Hugs back. Trying to keep strong. Happy to have found your blog.

    Reply
  54. Meredith
    Meredith says:

    Thank you. Much love! I’ll try to. Knowing people like you can stay strong with this gives me faith and strength. Thank you!

    Reply
  55. Amy Castillo
    Amy Castillo says:

    Amie, i have just come across this news even though I’ve visited your site before. Not coincidently, I’m sure, as I hunted for GF DF recipes for my husband after his diagnosis of Lyme- also in 2013. Just this week I received the same news. Along with a few more surprises. Looks like there is a lot of us on the same road. Thank you for shaing all you are learning about healing your body so we can learn along with you- and heal, too!

    Reply
  56. Mia-Marie
    Mia-Marie says:

    Hello, Im from Sweden…and I like your blog, just got here and have start reading – I was woundering if you heard aboute FODmap-diet? Maybe something for you?

    Sorry for my bad english…hope you understand!

    Reply
  57. karen
    karen says:

    dear annie,
    when I read your post, I could totally relate. I always knew something was wrong with me, it was really hard to get a diagnosis, and still truly don’t have an official one, but I have been told my body is making anti-bodies for lyme disease. I pray for you and your treatment goes well. my daughter who has lyme introduced me to the horror and shock in regards to how this country and medical profession handle this disease. I believe this is an epidemic that is not being discussed. I hope all goes well for you & will stay in touch. Karen reich

    Reply
  58. Theresa Ley
    Theresa Ley says:

    Hi Amie, your post was truly inspiring and I admire your positive attitude and your loving spirit. You have a gift and will be able to help many people and I consider myself blessed to have found you. For the past 5 plus years, I have been having one health crisis after another…first a total hip replacement, a diagnosis of Rheumatoid Arthritis last August, then periodontal disease from so much bone loss in my jaw, rapid, irregular heartbeat, pressure in my lungs making it hard to breath, severe hormonal imbalances, rashes and sores in my mouth that don’t heal, swollen salivary glands, extremely dry mouth, eyes and throat, trouble swallowing, talking and eating and I was diagnosed with Sjogrens Syndrome a few weeks ago which is associate with RA. I am also seeing a Hematologist because I’ve been anemic and have low blood platelets for more than a year now. I feel that what you said about Lyme Disease is 100% accurate. I’ve been doing so much research like you and found that Lyme Disease symptoms are the same as RA and even though I had a few tests and they were negative, I need to see a doctor that specializes in diagnosing and treating Lyme disease. I am going to see one this week and feel that this might be the answer to me regaining my health also. My prayers are with you and my heart goes out to you. You are so young and beautiful and have a full life ahead of you and you deserve to enjoy it. I will be 61 on May 4th and up until about 5 years ago I enjoyed good health, so I was very fortunate. I look forward to learning more about your treatment for Lyme…it will certainly benefit me and many others. Thank you Amie. Theresa in Ocala, FL

    Reply
  59. Kate@leanrunnerbean
    Kate@leanrunnerbean says:

    Wow – props to you for having gone through so much. I suffer from bad digestive problems and it can be unbelievably frustrating! Anyway, love your site – so much great info. PS. those cranberry cakes look awesome! Take care, Kate :)

    Reply

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